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R E S O L U T I O N
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WHEREAS, Ehlers-Danlos Syndromes and Hypermobility Spectrum |
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Disorders Awareness Month took place in May 2023; and |
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WHEREAS, Ehlers-Danlos syndromes (EDS) include 13 heritable |
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connective tissue disorders that together affect an estimated 1 in |
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5,000 people; each disorder has its own set of symptoms, but all |
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types of EDS are characterized by joint hypermobility, skin |
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hyperextensibility, and tissue fragility; and |
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WHEREAS, Hypermobility spectrum disorders (HSD) are |
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connective tissue disorders that cause joint hypermobility, |
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instability, injury, and pain; in addition, other symptoms such as |
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fatigue, headaches, gastrointestinal problems, and autonomic |
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dysfunction are often a result of HSD; and |
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WHEREAS, There is currently no available cure for any type of |
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EDS or HSD, and treatments typically focus on addressing symptoms; |
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because the conditions can affect many different areas of the body, |
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patients often require multiple providers in different specialties |
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to manage their care; and |
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WHEREAS, Numerous patients impacted by EDS and HSD have |
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limited access to professionals who are knowledgeable about these |
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health issues; increased awareness about each condition is |
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necessary to help diagnose patients, improve symptom management, |
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and promote research initiatives; and |
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WHEREAS, More work remains to be done to ensure that all EDS |
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and HSD patients have access to quality health care, and the |
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observance of Ehlers-Danlos Syndromes and Hypermobility Spectrum |
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Disorders Awareness Month unites people across Texas and around the |
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world in their commitment to that endeavor; now, therefore, be it |
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RESOLVED, That the Senate of the 88th Texas Legislature, 1st |
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Called Session, hereby recognize May 2023 as Ehlers-Danlos |
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Syndromes and Hypermobility Spectrum Disorders Awareness Month. |