S.B. No. 1142 AN ACT 1-1 relating to surrogate decision making for certain clients of an 1-2 intermediate care facility serving persons with mental retardation 1-3 or related conditions. 1-4 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: 1-5 SECTION 1. Subtitle D, Title 7, Health and Safety Code, is 1-6 amended by adding Chapter 597 to read as follows: 1-7 CHAPTER 597. CAPACITY OF CLIENTS TO CONSENT TO TREATMENT 1-8 SUBCHAPTER A. GENERAL PROVISIONS 1-9 Sec. 597.001. DEFINITIONS. In this chapter: 1-10 (1) "Highly restrictive procedure" means the 1-11 application of aversive stimuli, exclusionary time-out, physical 1-12 restraint, or a requirement to engage in an effortful task. 1-13 (2) "Client" means a person receiving services in a 1-14 community-based ICF-MR facility. 1-15 (3) "Committee" means a surrogate consent committee 1-16 established under Section 597.042. 1-17 (4) "ICF-MR" has the meaning assigned by Section 1-18 531.002. 1-19 (5) "Interdisciplinary team" means those 1-20 interdisciplinary teams defined in the Code of Federal Regulations 1-21 for participation in the intermediate care facilities for the 1-22 mentally retarded. 1-23 (6) "Major medical and dental treatment" means a 2-1 medical, surgical, dental, or diagnostic procedure or intervention 2-2 that: 2-3 (A) has a significant recovery period; 2-4 (B) presents a significant risk; 2-5 (C) employs a general anesthetic; or 2-6 (D) in the opinion of the primary physician, 2-7 involves a significant invasion of bodily integrity that requires 2-8 the extraction of bodily fluids or an incision or that produces 2-9 substantial pain, discomfort, or debilitation. 2-10 (7) "Psychoactive medication" means any medication 2-11 prescribed for the treatment of symptoms of psychosis or other 2-12 severe mental or emotional disorders and that is used to exercise 2-13 an effect upon the central nervous system for the purposes of 2-14 influencing and modifying behavior, cognition, or affective state. 2-15 (8) "Surrogate decision-maker" means an individual 2-16 authorized under Section 597.041 to consent on behalf of a client 2-17 residing in an ICF-MR facility. 2-18 Sec. 597.002. RULES. The board may adopt rules necessary to 2-19 implement this chapter not later than 180 days after its effective 2-20 date. 2-21 Sec. 597.003. EXCEPTIONS. (a) This chapter does not apply 2-22 to decisions for the following: 2-23 (1) experimental research; 2-24 (2) abortion; 2-25 (3) sterilization; 3-1 (4) management of client funds; and 3-2 (5) electroconvulsive treatment. 3-3 (b) This chapter does not apply to campus-based facilities 3-4 operated by the department. 3-5 (Sections 597.004 to 597.020 reserved for expansion 3-6 SUBCHAPTER B. ASSESSMENT OF CLIENT'S CAPACITY; 3-7 INCAPACITATED CLIENTS WITHOUT GUARDIANS 3-8 Sec. 597.021. ICF-MR ASSESSMENT OF CLIENT'S CAPACITY TO 3-9 CONSENT TO TREATMENT. (a) The board by rule shall require an 3-10 ICF-MR facility certified in this state to assess the capacity of 3-11 each adult client without a legal guardian to make treatment 3-12 decisions when there is evidence to suggest the individual is not 3-13 capable of making a decision covered under this chapter. 3-14 (b) The rules must require the use of a uniform assessment 3-15 process prescribed by board rule to determine a client's capacity 3-16 to make treatment decisions. 3-17 (Sections 597.022 to 597.040 reserved for expansion 3-18 SUBCHAPTER C. SURROGATE CONSENT FOR ICF-MR CLIENTS 3-19 Sec. 597.041. SURROGATE DECISION-MAKERS. (a) If the 3-20 results of an assessment conducted in accordance with Section 3-21 597.021 indicate that an adult client who does not have a legal 3-22 guardian or a client under 18 years of age who has no parent, legal 3-23 guardian, or managing or possessory conservator lacks the capacity 3-24 to make a major medical or dental treatment decision, an adult 3-25 surrogate from the following list, in order of descending 4-1 preference, who has decision-making capacity and who is willing to 4-2 consent on behalf of the client may consent to major medical or 4-3 dental treatment on behalf of the client: 4-4 (1) an actively involved spouse; 4-5 (2) an actively involved adult child who has the 4-6 waiver and consent of all other actively involved adult children of 4-7 the client to act as the sole decision-maker; 4-8 (3) an actively involved parent or stepparent; 4-9 (4) an actively involved adult sibling who has the 4-10 waiver and consent of all other actively involved adult siblings of 4-11 the client to act as the sole decision-maker; and 4-12 (5) any other actively involved adult relative who has 4-13 the waiver and consent of all other actively involved adult 4-14 relatives of the client to act as the sole decision-maker. 4-15 (b) Any person who consents on behalf of a client and who 4-16 acts in good faith, reasonably, and without malice is not 4-17 criminally or civilly liable for that action. 4-18 (c) Consent given by the surrogate decision-maker is valid 4-19 and competent to the same extent as if the client had the capacity 4-20 to consent and had consented. 4-21 (d) Any dispute as to the right of a party to act as a 4-22 surrogate decision-maker may be resolved only by a court of record 4-23 under Chapter V, Texas Probate Code. 4-24 Sec. 597.042. SURROGATE CONSENT COMMITTEE ESTABLISHED; 4-25 DEPARTMENTAL SUPPORT. (a) For cases in which there is no guardian 5-1 or surrogate decision-maker available, the department shall 5-2 establish and maintain a list of individuals qualified to serve on 5-3 a surrogate consent committee. 5-4 (b) The department shall provide the staff and assistance 5-5 necessary to perform the duties prescribed by this subchapter. 5-6 Sec. 597.043. COMMITTEE MEMBERSHIP. (a) A surrogate 5-7 consent committee considering an application for a treatment 5-8 decision shall be composed of at least three but not more than five 5-9 members, and consent on behalf of clients shall be based on 5-10 consensus of the members. 5-11 (b) A committee considering an application for a treatment 5-12 decision must consist of individuals who: 5-13 (1) are not employees of the facility; 5-14 (2) do not provide contractual services to the 5-15 facility; 5-16 (3) do not manage or exercise supervisory control 5-17 over: 5-18 (A) the facility or the employees of the 5-19 facility; or 5-20 (B) any company, corporation, or other legal 5-21 entity that manages or exercises control over the facility or the 5-22 employees of the facility; 5-23 (4) do not have a financial interest in the facility 5-24 or in any company, corporation, or other legal entity that has a 5-25 financial interest in the facility; and 6-1 (5) are not related to the client. 6-2 (c) The list of qualified individuals from which committee 6-3 members are drawn shall include: 6-4 (1) health care professionals licensed or registered 6-5 in this state who have specialized training in medicine, 6-6 psychopharmacology, or psychology; 6-7 (2) persons with mental retardation or parents, 6-8 siblings, spouses, or children of a person with mental retardation; 6-9 (3) attorneys licensed in this state who have 6-10 knowledge of legal issues of concern to persons with mental 6-11 retardation or to the families of persons with mental retardation; 6-12 (4) members of private organizations that advocate on 6-13 behalf of persons with mental retardation; and 6-14 (5) persons with demonstrated expertise or interest in 6-15 the care and treatment of persons with mental disabilities. 6-16 (d) At least one member of the committee must be an 6-17 individual listed in Subsection (c)(1) or (5). 6-18 (e) A member of a committee shall participate in education 6-19 and training as required by department rule. 6-20 (f) Each committee shall designate a committee chair. 6-21 Sec. 597.044. APPLICATION FOR TREATMENT DECISION. (a) If 6-22 the results of the assessment conducted in accordance with Section 6-23 597.021 indicate that a client who does not have a legal guardian 6-24 or surrogate decision-maker lacks the capacity to make a treatment 6-25 decision about major medical or dental treatment, psychoactive 7-1 medication, or a highly restrictive procedure, the ICF-MR facility 7-2 must file an application for a treatment decision with the 7-3 department. 7-4 (b) An application must be in the form prescribed by the 7-5 department, must be signed by the applicant, and must: 7-6 (1) state that the applicant has reason to believe and 7-7 does believe that the client has a need for major medical or dental 7-8 treatment, psychoactive medication, or a highly restrictive 7-9 procedure; 7-10 (2) specify the condition proposed to be treated; 7-11 (3) provide a description of the proposed treatment, 7-12 including the risks and benefits to the client of the proposed 7-13 treatment; 7-14 (4) state the applicant's opinion on whether the 7-15 proposed treatment promotes the client's best interest and the 7-16 grounds for the opinion; 7-17 (5) state the client's opinion about the proposed 7-18 treatment, if known; 7-19 (6) provide any other information necessary to 7-20 determine the client's best interests regarding the treatment; and 7-21 (7) state that the client does not have a guardian of 7-22 the person and does not have a parent, spouse, child, or other 7-23 person with demonstrated interest in the care and welfare of the 7-24 client who is able and willing to become the client's guardian or 7-25 surrogate decision-maker. 8-1 Sec. 597.045. NOTICE OF REVIEW OF APPLICATION FOR TREATMENT 8-2 DECISION. (a) On receipt of an application for a treatment 8-3 decision, the department shall appoint a surrogate consent 8-4 committee. 8-5 (b) The department shall notify pro bono attorney programs 8-6 if available in the area in which the client resides of the intent 8-7 to review an application for treatment decision. 8-8 (c) The ICF-MR facility with assistance from the department 8-9 shall schedule a review of the application. 8-10 (d) The ICF-MR facility shall send notice of the date, 8-11 place, and time of the review to the surrogate consent committee, 8-12 the pro bono attorney program if available in the area in which the 8-13 client resides, the client who is the subject of the application, 8-14 the client's parent, spouse, adult child, or other person known to 8-15 have a demonstrated interest in the care and welfare of the client, 8-16 and any other person as prescribed by board rule. The ICF-MR 8-17 facility shall include a copy of the application and a statement of 8-18 the committee's procedure for consideration of the application, 8-19 including the opportunity to be heard or to present evidence and to 8-20 appeal. 8-21 Sec. 597.046. PREREVIEW OF APPLICATION. (a) Before the 8-22 date of the review of an application for a treatment decision the 8-23 committee chair shall review the application to determine whether 8-24 additional information may be necessary to assist the committee in 8-25 determining the client's best interest under the circumstances. 9-1 (b) A committee member may consult with a person who might 9-2 assist in the determination of the best interest of the client or 9-3 in learning the personal opinions, beliefs, and values of the 9-4 client. 9-5 (c) If a committee that does not include in its membership 9-6 an individual listed in Section 597.043(c)(1) is to review an 9-7 application for a treatment decision about psychoactive medication, 9-8 the committee chair shall consult with a health care professional 9-9 licensed or registered in this state to assist the committee in the 9-10 determination of the best interest of the client. 9-11 Sec. 597.047. CONFIDENTIAL INFORMATION. Notwithstanding any 9-12 other state law, a person licensed by this state to provide 9-13 services related to health care or to the treatment or care of a 9-14 person with mental retardation, a developmental disability, or a 9-15 mental illness shall provide to the committee members any 9-16 information the committee requests that is relevant to the client's 9-17 need for a proposed treatment. 9-18 Sec. 597.048. REVIEW OF APPLICATION. (a) The committee 9-19 shall review the application at the time, place, and date provided 9-20 by the ICF-MR facility in the notice under Section 597.045. 9-21 (b) A person notified under Section 597.045 is entitled to 9-22 be present and to present evidence personally or through a 9-23 representative. 9-24 (c) The committee may take testimony or review evidence from 9-25 any person who might assist the committee in determining a client's 10-1 best interest. 10-2 (d) Formal rules of evidence do not apply to committee 10-3 proceedings. 10-4 (e) If practicable, the committee shall interview and 10-5 observe the client before making a determination of the client's 10-6 best interest, and in those cases when a client is not interviewed, 10-7 the reason must be documented in the client's record. 10-8 (f) At any time before the committee makes its determination 10-9 of a client's best interest under Section 597.049, the committee 10-10 chair shall suspend the review of the application for not more than 10-11 five days if any person applies for appointment as the client's 10-12 guardian of the person in accordance with the Texas Probate Code. 10-13 Sec. 597.049. DETERMINATION OF BEST INTEREST. (a) The 10-14 committee shall make a determination, based on clear and convincing 10-15 evidence, of whether the proposed treatment promotes the client's 10-16 best interest and a determination that: 10-17 (1) a person has not been appointed as the guardian of 10-18 the client's person before the sixth day after proceedings are 10-19 suspended under Section 597.048(f); or 10-20 (2) there is a medical necessity, based on clear and 10-21 convincing evidence, that the determination about the proposed 10-22 treatment occur before guardianship proceedings are completed. 10-23 (b) In making its determination of the best interest of the 10-24 client, the committee shall consider fully the preference of the 10-25 client as articulated at any time. 11-1 (c) According to its determination of the client's best 11-2 interest, the committee shall consent or refuse the treatment on 11-3 the client's behalf. 11-4 (d) The committee shall determine a date on which the 11-5 consent becomes effective. 11-6 (e) A person serving on a committee who consents or refuses 11-7 to consent on behalf of a client and who acts in good faith, 11-8 reasonably, and without malice is not criminally or civilly liable 11-9 for that action. 11-10 Sec. 597.050. NOTICE OF DETERMINATION. (a) The committee 11-11 shall issue a written opinion containing each of its determinations 11-12 and a separate statement of the committee's findings of fact. 11-13 (b) The committee shall send a copy of the committee's 11-14 opinion to: 11-15 (1) each person notified under Section 597.045; 11-16 (2) the director of the client's ICF-MR facility; and 11-17 (3) the department. 11-18 Sec. 597.051. EFFECT OF COMMITTEE'S DETERMINATION. This 11-19 chapter does not limit the availability of other lawful means of 11-20 obtaining a client's consent for medical treatment. 11-21 Sec. 597.052. SCOPE OF CONSENT. (a) The committee or the 11-22 surrogate decision-maker may consent to the release of records 11-23 related to the client's condition or treatment to facilitate 11-24 treatment to which the committee or surrogate decision-maker has 11-25 consented. 12-1 (b) The interdisciplinary team may consent to psychoactive 12-2 medication subsequent to the initial decision for administration of 12-3 psychoactive medication made by a surrogate consent committee. 12-4 (c) Unless another decision-making mechanism is provided for 12-5 by law, a client, a client's authorized surrogate decision-maker if 12-6 available, or the client's interdisciplinary team may consent to 12-7 decisions which involve risk to client protection and rights not 12-8 specifically reserved to surrogate decision-makers or surrogate 12-9 consent committees. 12-10 Sec. 597.053. APPEALS. (a) A person notified under Section 12-11 597.045 may appeal the committee's decision by filing a petition in 12-12 the probate court or court having probate jurisdiction for the 12-13 county in which the client resides or in Travis County. The person 12-14 must file the appeal not later than the 15th day after the 12-15 effective date of the committee's determination. 12-16 (b) If the hearing is to be held in a probate court in which 12-17 the judge is not a licensed attorney, the person filing the appeal 12-18 may request that the proceeding be transferred to a court with a 12-19 judge who is licensed to practice law in this state. The probate 12-20 court judge shall transfer the case after receiving the request, 12-21 and the receiving court shall hear the case as if it had been 12-22 originally filed in that court. 12-23 (c) A copy of the petition must be served on all parties of 12-24 record in the proceedings before the committee. 12-25 (d) After considering the nature of the condition of the 13-1 client, the proposed treatment, and the need for timely medical 13-2 attention, the court may issue a temporary restraining order to 13-3 facilitate the appeal. If the order is granted, the court shall 13-4 expedite the trial. 13-5 Sec. 597.054. PROCEDURES. (a) Each ICF-MR shall develop 13-6 procedures for the surrogate consent committees in accordance with 13-7 the rules adopted under Section 597.002. 13-8 (b) A committee shall phase in, during the three-year period 13-9 immediately following the effective date of this chapter, its 13-10 initial review process for applications for treatment decisions 13-11 regarding adult clients who do not have legal guardians and who are 13-12 receiving psychoactive medication. 13-13 (c) A committee is not subject to the Administrative 13-14 Procedure and Texas Register Act (Article 6252-13a, Vernon's Texas 13-15 Civil Statutes), the open meetings law, Chapter 271, Acts of the 13-16 60th Legislature, Regular Session, 1967 (Article 6252-17, Vernon's 13-17 Texas Civil Statutes), or the open records law, Chapter 424, Acts 13-18 of the 63rd Legislature, Regular Session, 1973 (Article 6252-17a, 13-19 Vernon's Texas Civil Statutes). 13-20 Sec. 597.055. EXPIRATION. This chapter expires August 31, 13-21 1997. 13-22 SECTION 2. The importance of this legislation and the 13-23 crowded condition of the calendars in both houses create an 13-24 emergency and an imperative public necessity that the 13-25 constitutional rule requiring bills to be read on three several 14-1 days in each house be suspended, and this rule is hereby suspended, 14-2 and that this Act take effect and be in force from and after its 14-3 passage, and it is so enacted.