S.B. No. 1142
                                        AN ACT
    1-1  relating to surrogate decision making for certain clients of an
    1-2  intermediate care facility serving persons with mental retardation
    1-3  or related conditions.
    1-4        BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
    1-5        SECTION 1.  Subtitle D, Title 7, Health and Safety Code, is
    1-6  amended by adding Chapter 597 to read as follows:
    1-7       CHAPTER 597.  CAPACITY OF CLIENTS TO CONSENT TO TREATMENT
    1-8                   SUBCHAPTER A.  GENERAL PROVISIONS
    1-9        Sec. 597.001.  DEFINITIONS.  In this chapter:
   1-10              (1)  "Highly restrictive procedure" means the
   1-11  application of aversive stimuli, exclusionary time-out, physical
   1-12  restraint, or a requirement to engage in an effortful task.
   1-13              (2)  "Client" means a person receiving services in a
   1-14  community-based ICF-MR facility.
   1-15              (3)  "Committee" means a surrogate consent committee
   1-16  established under Section 597.042.
   1-17              (4)  "ICF-MR" has the meaning assigned by Section
   1-18  531.002.
   1-19              (5)  "Interdisciplinary team" means those
   1-20  interdisciplinary teams defined in the Code of Federal Regulations
   1-21  for participation in the intermediate care facilities for the
   1-22  mentally retarded.
   1-23              (6)  "Major medical and dental treatment" means a
    2-1  medical, surgical, dental, or diagnostic procedure or intervention
    2-2  that:
    2-3                    (A)  has a significant recovery period;
    2-4                    (B)  presents a significant risk;
    2-5                    (C)  employs a general anesthetic; or
    2-6                    (D)  in the opinion of the primary physician,
    2-7  involves a significant invasion of bodily integrity that requires
    2-8  the extraction of bodily fluids or an incision or that produces
    2-9  substantial pain, discomfort, or debilitation.
   2-10              (7)  "Psychoactive medication" means any medication
   2-11  prescribed for the treatment of symptoms of psychosis or other
   2-12  severe mental or emotional disorders and that is used to exercise
   2-13  an effect upon the central nervous system for the purposes of
   2-14  influencing and modifying behavior, cognition, or affective state.
   2-15              (8)  "Surrogate decision-maker" means an individual
   2-16  authorized under Section 597.041 to consent on behalf of a client
   2-17  residing in an ICF-MR facility.
   2-18        Sec. 597.002.  RULES.  The board may adopt rules necessary to
   2-19  implement this chapter not later than 180 days after its effective
   2-20  date.
   2-21        Sec. 597.003.  EXCEPTIONS.  (a)  This chapter does not apply
   2-22  to decisions for the following:
   2-23              (1)  experimental research;
   2-24              (2)  abortion;
   2-25              (3)  sterilization;
    3-1              (4)  management of client funds; and
    3-2              (5)  electroconvulsive treatment.
    3-3        (b)  This chapter does not apply to campus-based facilities
    3-4  operated by the department.
    3-5         (Sections 597.004 to 597.020 reserved for expansion
    3-6            SUBCHAPTER B.  ASSESSMENT OF CLIENT'S CAPACITY;
    3-7                INCAPACITATED CLIENTS WITHOUT GUARDIANS
    3-8        Sec. 597.021.  ICF-MR ASSESSMENT OF CLIENT'S CAPACITY TO
    3-9  CONSENT TO TREATMENT.  (a)  The board by rule shall require an
   3-10  ICF-MR facility certified in this state to assess the capacity of
   3-11  each adult client without a legal guardian to make treatment
   3-12  decisions when there is evidence to suggest the individual is not
   3-13  capable of making a decision covered under this chapter.
   3-14        (b)  The rules must require the use of a uniform assessment
   3-15  process prescribed by board rule to determine a client's capacity
   3-16  to make treatment decisions.
   3-17         (Sections 597.022 to 597.040 reserved for expansion
   3-18          SUBCHAPTER C.  SURROGATE CONSENT FOR ICF-MR CLIENTS
   3-19        Sec. 597.041.  SURROGATE DECISION-MAKERS.  (a)  If the
   3-20  results of an assessment conducted in accordance with Section
   3-21  597.021 indicate that an adult client who does not have a legal
   3-22  guardian or a client under 18 years of age who has no parent, legal
   3-23  guardian, or managing or possessory conservator lacks the capacity
   3-24  to make a major medical or dental treatment decision, an adult
   3-25  surrogate from the following list, in order of descending
    4-1  preference, who has decision-making capacity and who is willing to
    4-2  consent on behalf of the client may consent to major medical or
    4-3  dental treatment on behalf of the client:
    4-4              (1)  an actively involved spouse;
    4-5              (2)  an actively involved adult child who has the
    4-6  waiver and consent of all other actively involved adult children of
    4-7  the client to act as the sole decision-maker;
    4-8              (3)  an actively involved parent or stepparent;
    4-9              (4)  an actively involved adult sibling who has the
   4-10  waiver and consent of all other actively involved adult siblings of
   4-11  the client to act as the sole decision-maker; and
   4-12              (5)  any other actively involved adult relative who has
   4-13  the waiver and consent of all other actively involved adult
   4-14  relatives of the client to act as the sole decision-maker.
   4-15        (b)  Any person who consents on behalf of a client and who
   4-16  acts in good faith, reasonably, and without malice is not
   4-17  criminally or civilly liable for that action.
   4-18        (c)  Consent given by the surrogate decision-maker is valid
   4-19  and competent to the same extent as if the client had the capacity
   4-20  to consent and had consented.
   4-21        (d)  Any dispute as to the right of a party to act as a
   4-22  surrogate decision-maker may be resolved only by a court of record
   4-23  under Chapter V, Texas Probate Code.
   4-24        Sec. 597.042.  SURROGATE CONSENT COMMITTEE ESTABLISHED;
   4-25  DEPARTMENTAL SUPPORT.  (a)  For cases in which there is no guardian
    5-1  or surrogate decision-maker available, the department shall
    5-2  establish and maintain a list of individuals qualified to serve on
    5-3  a surrogate consent committee.
    5-4        (b)  The department shall provide the staff and assistance
    5-5  necessary to perform the duties prescribed by this subchapter.
    5-6        Sec. 597.043.  COMMITTEE MEMBERSHIP.  (a)  A surrogate
    5-7  consent committee considering an application for a treatment
    5-8  decision shall be composed of at least three but not more than five
    5-9  members, and consent on behalf of clients shall be based on
   5-10  consensus of the members.
   5-11        (b)  A committee considering an application for a treatment
   5-12  decision must consist of individuals who:
   5-13              (1)  are not employees of the facility;
   5-14              (2)  do not provide contractual services to the
   5-15  facility;
   5-16              (3)  do not manage or exercise supervisory control
   5-17  over:
   5-18                    (A)  the facility or the employees of the
   5-19  facility; or
   5-20                    (B)  any company, corporation, or other legal
   5-21  entity that manages or exercises control over the facility or the
   5-22  employees of the facility;
   5-23              (4)  do not have a financial interest in the facility
   5-24  or in any company, corporation, or other legal entity that has a
   5-25  financial interest in the facility; and
    6-1              (5)  are not related to the client.
    6-2        (c)  The list of qualified individuals from which committee
    6-3  members are drawn shall include:
    6-4              (1)  health care professionals licensed or registered
    6-5  in this state who have specialized training in medicine,
    6-6  psychopharmacology, or psychology;
    6-7              (2)  persons with mental retardation or parents,
    6-8  siblings, spouses, or children of a person with mental retardation;
    6-9              (3)  attorneys licensed in this state who have
   6-10  knowledge of legal issues of concern to persons with mental
   6-11  retardation or to the families of persons with mental retardation;
   6-12              (4)  members of private organizations that advocate on
   6-13  behalf of persons with mental retardation; and
   6-14              (5)  persons with demonstrated expertise or interest in
   6-15  the care and treatment of persons with mental disabilities.
   6-16        (d)  At least one member of the committee must be an
   6-17  individual listed in Subsection (c)(1) or (5).
   6-18        (e)  A member of a committee shall participate in education
   6-19  and training as required by department rule.
   6-20        (f)  Each committee shall designate a committee chair.
   6-21        Sec. 597.044.  APPLICATION FOR TREATMENT DECISION.  (a)  If
   6-22  the results of the assessment conducted in accordance with Section
   6-23  597.021 indicate that a client who does not have a legal guardian
   6-24  or surrogate decision-maker lacks the capacity to make a treatment
   6-25  decision about major medical or dental treatment, psychoactive
    7-1  medication, or a highly restrictive procedure, the ICF-MR facility
    7-2  must file an application for a treatment decision with the
    7-3  department.
    7-4        (b)  An application must be in the form prescribed by the
    7-5  department, must be signed by the applicant, and must:
    7-6              (1)  state that the applicant has reason to believe and
    7-7  does believe that the client has a need for major medical or dental
    7-8  treatment, psychoactive medication, or a highly restrictive
    7-9  procedure;
   7-10              (2)  specify the condition proposed to be treated;
   7-11              (3)  provide a description of the proposed treatment,
   7-12  including the risks and benefits to the client of the proposed
   7-13  treatment;
   7-14              (4)  state the applicant's opinion on whether the
   7-15  proposed treatment promotes the client's best interest and the
   7-16  grounds for the opinion;
   7-17              (5)  state the client's opinion about the proposed
   7-18  treatment, if known;
   7-19              (6)  provide any other information necessary to
   7-20  determine the client's best interests regarding the treatment; and
   7-21              (7)  state that the client does not have a guardian of
   7-22  the person and does not have a parent, spouse, child, or other
   7-23  person with demonstrated interest in the care and welfare of the
   7-24  client who is able and willing to become the client's guardian or
   7-25  surrogate decision-maker.
    8-1        Sec. 597.045.  NOTICE OF REVIEW OF APPLICATION FOR TREATMENT
    8-2  DECISION.  (a)  On receipt of an application for a treatment
    8-3  decision, the department shall appoint a surrogate consent
    8-4  committee.
    8-5        (b)  The department shall notify pro bono attorney programs
    8-6  if available in the area in which the client resides of the intent
    8-7  to review an application for treatment decision.
    8-8        (c)  The ICF-MR facility with assistance from the department
    8-9  shall schedule a review of the application.
   8-10        (d)  The ICF-MR facility shall send notice of the date,
   8-11  place, and time of the review to the surrogate consent committee,
   8-12  the pro bono attorney program if available in the area in which the
   8-13  client resides, the client who is the subject of the application,
   8-14  the client's parent, spouse, adult child, or other person known to
   8-15  have a demonstrated interest in the care and welfare of the client,
   8-16  and any other person as prescribed by board rule.  The ICF-MR
   8-17  facility shall include a copy of the application and a statement of
   8-18  the committee's procedure for consideration of the application,
   8-19  including the opportunity to be heard or to present evidence and to
   8-20  appeal.
   8-21        Sec. 597.046.  PREREVIEW OF APPLICATION.  (a)  Before the
   8-22  date of the review of an application for a treatment decision the
   8-23  committee chair shall review the application to determine whether
   8-24  additional information may be necessary to assist the committee in
   8-25  determining the client's best interest under the circumstances.
    9-1        (b)  A committee member may consult with a person who might
    9-2  assist in the determination of the best interest of the client or
    9-3  in learning the personal opinions, beliefs, and values of the
    9-4  client.
    9-5        (c)  If a committee that does not include in its membership
    9-6  an individual listed in Section 597.043(c)(1) is to review an
    9-7  application for a treatment decision about psychoactive medication,
    9-8  the committee chair shall consult with a health care professional
    9-9  licensed or registered in this state to assist the committee in the
   9-10  determination of the best interest of the client.
   9-11        Sec. 597.047.  CONFIDENTIAL INFORMATION.  Notwithstanding any
   9-12  other state law, a person licensed by this state to provide
   9-13  services related to health care or to the treatment or care of a
   9-14  person with mental retardation, a developmental disability, or a
   9-15  mental illness shall provide to the committee members any
   9-16  information the committee requests that is relevant to the client's
   9-17  need for a proposed treatment.
   9-18        Sec. 597.048.  REVIEW OF APPLICATION.  (a)  The committee
   9-19  shall review the application at the time, place, and date provided
   9-20  by the ICF-MR facility in the notice under Section 597.045.
   9-21        (b)  A person notified under Section 597.045 is entitled to
   9-22  be present and to present evidence personally or through a
   9-23  representative.
   9-24        (c)  The committee may take testimony or review evidence from
   9-25  any person who might assist the committee in determining a client's
   10-1  best interest.
   10-2        (d)  Formal rules of evidence do not apply to committee
   10-3  proceedings.
   10-4        (e)  If practicable, the committee shall interview and
   10-5  observe the client before making a determination of the client's
   10-6  best interest, and in those cases when a client is not interviewed,
   10-7  the reason must be documented in the client's record.
   10-8        (f)  At any time before the committee makes its determination
   10-9  of a client's best interest under Section 597.049, the committee
  10-10  chair shall suspend the review of the application for not more than
  10-11  five days if any person applies for appointment as the client's
  10-12  guardian of the person in accordance with the Texas Probate Code.
  10-13        Sec. 597.049.  DETERMINATION OF BEST INTEREST.  (a)  The
  10-14  committee shall make a determination, based on clear and convincing
  10-15  evidence, of whether the proposed treatment promotes the client's
  10-16  best interest and a determination that:
  10-17              (1)  a person has not been appointed as the guardian of
  10-18  the client's person before the sixth day after proceedings are
  10-19  suspended under Section 597.048(f); or
  10-20              (2)  there is a medical necessity, based on clear and
  10-21  convincing evidence, that the determination about the proposed
  10-22  treatment occur before guardianship proceedings are completed.
  10-23        (b)  In making its determination of the best interest of the
  10-24  client, the committee shall consider fully the preference of the
  10-25  client as articulated at any time.
   11-1        (c)  According to its determination of the client's best
   11-2  interest, the committee shall consent or refuse the treatment on
   11-3  the client's behalf.
   11-4        (d)  The committee shall determine a date on which the
   11-5  consent becomes effective.
   11-6        (e)  A person serving on a committee who consents or refuses
   11-7  to consent on behalf of a client and who acts in good faith,
   11-8  reasonably, and without malice is not criminally or civilly liable
   11-9  for that action.
  11-10        Sec. 597.050.  NOTICE OF DETERMINATION.  (a)  The committee
  11-11  shall issue a written opinion containing each of its determinations
  11-12  and a separate statement of the committee's findings of fact.
  11-13        (b)  The committee shall send a copy of the committee's
  11-14  opinion to:
  11-15              (1)  each person notified under Section 597.045;
  11-16              (2)  the director of the client's ICF-MR facility; and
  11-17              (3)  the department.
  11-18        Sec. 597.051.  EFFECT OF COMMITTEE'S DETERMINATION.  This
  11-19  chapter does not limit the availability of other lawful means of
  11-20  obtaining a client's consent for medical treatment.
  11-21        Sec. 597.052.  SCOPE OF CONSENT.  (a)  The committee or the
  11-22  surrogate decision-maker may consent to the release of records
  11-23  related to the client's condition or treatment to facilitate
  11-24  treatment to which the committee or surrogate decision-maker has
  11-25  consented.
   12-1        (b)  The interdisciplinary team may consent to psychoactive
   12-2  medication subsequent to the initial decision for administration of
   12-3  psychoactive medication made by a surrogate consent committee.
   12-4        (c)  Unless another decision-making mechanism is provided for
   12-5  by law, a client, a client's authorized surrogate decision-maker if
   12-6  available, or the client's interdisciplinary team may consent to
   12-7  decisions which involve risk to client protection and rights not
   12-8  specifically reserved to surrogate decision-makers or surrogate
   12-9  consent committees.
  12-10        Sec. 597.053.  APPEALS.  (a)  A person notified under Section
  12-11  597.045 may appeal the committee's decision by filing a petition in
  12-12  the probate court or court having probate jurisdiction for the
  12-13  county in which the client resides or in Travis County.  The person
  12-14  must file the appeal not later than the 15th day after the
  12-15  effective date of the committee's determination.
  12-16        (b)  If the hearing is to be held in a probate court in which
  12-17  the judge is not a licensed attorney, the person filing the appeal
  12-18  may request that the proceeding be transferred to a court with a
  12-19  judge who is licensed to practice law in this state.  The probate
  12-20  court judge shall transfer the case after receiving the request,
  12-21  and the receiving court shall hear the case as if it had been
  12-22  originally filed in that court.
  12-23        (c)  A copy of the petition must be served on all parties of
  12-24  record in the proceedings before the committee.
  12-25        (d)  After considering the nature of the condition of the
   13-1  client, the proposed treatment, and the need for timely medical
   13-2  attention, the court may issue a temporary restraining order to
   13-3  facilitate the appeal.  If the order is granted, the court shall
   13-4  expedite the trial.
   13-5        Sec. 597.054.  PROCEDURES.  (a)  Each ICF-MR shall develop
   13-6  procedures for the surrogate consent committees in accordance with
   13-7  the rules adopted under Section 597.002.
   13-8        (b)  A committee shall phase in, during the three-year period
   13-9  immediately following the effective date of this chapter, its
  13-10  initial review process for applications for treatment decisions
  13-11  regarding adult clients who do not have legal guardians and who are
  13-12  receiving psychoactive medication.
  13-13        (c)  A committee is not subject to the Administrative
  13-14  Procedure and Texas Register Act (Article 6252-13a, Vernon's Texas
  13-15  Civil Statutes), the open meetings law, Chapter 271, Acts of the
  13-16  60th Legislature, Regular Session, 1967 (Article 6252-17, Vernon's
  13-17  Texas Civil Statutes), or the open records law, Chapter 424, Acts
  13-18  of the 63rd Legislature, Regular Session, 1973 (Article 6252-17a,
  13-19  Vernon's Texas Civil Statutes).
  13-20        Sec. 597.055.  EXPIRATION.  This chapter expires August 31,
  13-21  1997.
  13-22        SECTION 2.  The importance of this legislation and the
  13-23  crowded condition of the calendars in both houses create an
  13-24  emergency and an imperative public necessity that the
  13-25  constitutional rule requiring bills to be read on three several
   14-1  days in each house be suspended, and this rule is hereby suspended,
   14-2  and that this Act take effect and be in force from and after its
   14-3  passage, and it is so enacted.