1-1 By: Moncrief S.B. No. 1142 1-2 (In the Senate - Filed March 12, 1993; March 15, 1993, read 1-3 first time and referred to Committee on Health and Human Services; 1-4 April 21, 1993, reported adversely, with favorable Committee 1-5 Substitute by the following vote: Yeas 7, Nays 0; April 21, 1993, 1-6 sent to printer.) 1-7 COMMITTEE VOTE 1-8 Yea Nay PNV Absent 1-9 Zaffirini x 1-10 Ellis x 1-11 Madla x 1-12 Moncrief x 1-13 Nelson x 1-14 Patterson x 1-15 Shelley x 1-16 Truan x 1-17 Wentworth x 1-18 COMMITTEE SUBSTITUTE FOR S.B. No. 1142 By: Moncrief, Truan 1-19 A BILL TO BE ENTITLED 1-20 AN ACT 1-21 relating to surrogate decision making for certain clients of an 1-22 intermediate care facility serving persons with mental retardation 1-23 or related conditions. 1-24 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: 1-25 SECTION 1. Subtitle D, Title 7, Health and Safety Code, is 1-26 amended by adding Chapter 597 to read as follows: 1-27 CHAPTER 597. CAPACITY OF CLIENTS TO CONSENT TO TREATMENT 1-28 SUBCHAPTER A. GENERAL PROVISIONS 1-29 Sec. 597.001. DEFINITIONS. In this chapter: 1-30 (1) "Highly restrictive procedure" means the 1-31 application of aversive stimuli, exclusionary time-out, physical 1-32 restraint, or a requirement to engage in an effortful task. 1-33 (2) "Client" means a person receiving services in a 1-34 community-based ICF-MR facility. 1-35 (3) "Committee" means a surrogate consent committee 1-36 established under Section 597.042. 1-37 (4) "ICF-MR" has the meaning assigned by Section 1-38 531.002. 1-39 (5) "Interdisciplinary team" means those 1-40 interdisciplinary teams defined in the Code of Federal Regulations 1-41 for participation in the intermediate care facilities for the 1-42 mentally retarded. 1-43 (6) "Major medical and dental treatment" means a 1-44 medical, surgical, dental, or diagnostic procedure or intervention 1-45 that: 1-46 (A) has a significant recovery period; 1-47 (B) presents a significant risk; 1-48 (C) employs a general anesthetic; or 1-49 (D) in the opinion of the primary physician, 1-50 involves a significant invasion of bodily integrity that requires 1-51 the extraction of bodily fluids or an incision or that produces 1-52 substantial pain, discomfort, or debilitation. 1-53 (7) "Psychoactive medication" means any medication 1-54 prescribed for the treatment of symptoms of psychosis or other 1-55 severe mental or emotional disorders and that is used to exercise 1-56 an effect upon the central nervous system for the purposes of 1-57 influencing and modifying behavior, cognition, or affective state. 1-58 (8) "Surrogate decision-maker" means an individual 1-59 authorized under Section 597.041 to consent on behalf of a client 1-60 residing in an ICF-MR facility. 1-61 Sec. 597.002. RULES. The board may adopt rules necessary to 1-62 implement this chapter not later than 180 days after its effective 1-63 date. 1-64 Sec. 597.003. EXCEPTIONS. (a) This chapter does not apply 1-65 to decisions for the following: 1-66 (1) experimental research; 1-67 (2) abortion; 1-68 (3) sterilization; 2-1 (4) management of client funds; and 2-2 (5) electroconvulsive treatment. 2-3 (b) This chapter does not apply to campus-based facilities 2-4 operated by the department. 2-5 (Sections 597.004 to 597.020 reserved for expansion 2-6 SUBCHAPTER B. ASSESSMENT OF CLIENT'S CAPACITY; 2-7 INCAPACITATED CLIENTS WITHOUT GUARDIANS 2-8 Sec. 597.021. ICF-MR ASSESSMENT OF CLIENT'S CAPACITY TO 2-9 CONSENT TO TREATMENT. (a) The board by rule shall require an 2-10 ICF-MR facility certified in this state to assess the capacity of 2-11 each adult client without a legal guardian to make treatment 2-12 decisions when there is evidence to suggest the individual is not 2-13 capable of making a decision covered under this chapter. 2-14 (b) The rules must require the use of a uniform assessment 2-15 process prescribed by board rule to determine a client's capacity 2-16 to make treatment decisions. 2-17 (Sections 597.022 to 597.040 reserved for expansion 2-18 SUBCHAPTER C. SURROGATE CONSENT FOR ICF-MR CLIENTS 2-19 Sec. 597.041. SURROGATE DECISION-MAKERS. (a) If the 2-20 results of an assessment conducted in accordance with Section 2-21 597.021 indicate that an adult client who does not have a legal 2-22 guardian or a client under 18 years of age who has no parent, legal 2-23 guardian, or managing or possessory conservator lacks the capacity 2-24 to make a major medical or dental treatment decision, an adult 2-25 surrogate from the following list, in order of descending 2-26 preference, who has decision-making capacity and who is willing to 2-27 consent on behalf of the client may consent to major medical or 2-28 dental treatment on behalf of the client: 2-29 (1) an actively involved spouse; 2-30 (2) an actively involved adult child who has the 2-31 waiver and consent of all other actively involved adult children of 2-32 the client to act as the sole decision-maker; 2-33 (3) an actively involved parent or stepparent; 2-34 (4) an actively involved adult sibling who has the 2-35 waiver and consent of all other actively involved adult siblings of 2-36 the client to act as the sole decision-maker; and 2-37 (5) any other actively involved adult relative who has 2-38 the waiver and consent of all other actively involved adult 2-39 relatives of the client to act as the sole decision-maker. 2-40 (b) Any person who consents on behalf of a client and who 2-41 acts in good faith, reasonably, and without malice is not 2-42 criminally or civilly liable for that action. 2-43 (c) Consent given by the surrogate decision-maker is valid 2-44 and competent to the same extent as if the client had the capacity 2-45 to consent and had consented. 2-46 (d) Any dispute as to the right of a party to act as a 2-47 surrogate decision-maker may be resolved only by a court of record 2-48 under Chapter V, Texas Probate Code. 2-49 Sec. 597.042. SURROGATE CONSENT COMMITTEE ESTABLISHED; 2-50 DEPARTMENTAL SUPPORT. (a) For cases in which there is no guardian 2-51 or surrogate decision-maker available, the department shall 2-52 establish and maintain a list of individuals qualified to serve on 2-53 a surrogate consent committee. 2-54 (b) The department shall provide the staff and assistance 2-55 necessary to perform the duties prescribed by this subchapter. 2-56 Sec. 597.043. COMMITTEE MEMBERSHIP. (a) A surrogate 2-57 consent committee considering an application for a treatment 2-58 decision shall be composed of at least three but not more than five 2-59 members, and consent on behalf of clients shall be based on 2-60 consensus of the members. 2-61 (b) A committee considering an application for a treatment 2-62 decision must consist of individuals who: 2-63 (1) are not employees of the facility; 2-64 (2) do not provide contractual services to the 2-65 facility; 2-66 (3) do not manage or exercise supervisory control 2-67 over: 2-68 (A) the facility or the employees of the 2-69 facility; or 2-70 (B) any company, corporation, or other legal 3-1 entity that manages or exercises control over the facility or the 3-2 employees of the facility; 3-3 (4) do not have a financial interest in the facility 3-4 or in any company, corporation, or other legal entity that has a 3-5 financial interest in the facility; and 3-6 (5) are not related to the client. 3-7 (c) The list of qualified individuals from which committee 3-8 members are drawn shall include: 3-9 (1) health care professionals licensed or registered 3-10 in this state who have specialized training in medicine, 3-11 psychopharmacology, or psychology; 3-12 (2) persons with mental retardation or parents, 3-13 siblings, spouses, or children of a person with mental retardation; 3-14 (3) attorneys licensed in this state who have 3-15 knowledge of legal issues of concern to persons with mental 3-16 retardation or to the families of persons with mental retardation; 3-17 (4) members of private organizations that advocate on 3-18 behalf of persons with mental retardation; and 3-19 (5) persons with demonstrated expertise or interest in 3-20 the care and treatment of persons with mental disabilities. 3-21 (d) At least one member of the committee must be an 3-22 individual listed in Subsection (c)(1) or (5). 3-23 (e) A member of a committee shall participate in education 3-24 and training as required by department rule. 3-25 (f) Each committee shall designate a committee chair. 3-26 Sec. 597.044. APPLICATION FOR TREATMENT DECISION. (a) If 3-27 the results of the assessment conducted in accordance with Section 3-28 597.021 indicate that a client who does not have a legal guardian 3-29 or surrogate decision-maker lacks the capacity to make a treatment 3-30 decision about major medical or dental treatment, psychoactive 3-31 medication, or a highly restrictive procedure, the ICF-MR facility 3-32 must file an application for a treatment decision with the 3-33 department. 3-34 (b) An application must be in the form prescribed by the 3-35 department, must be signed by the applicant, and must: 3-36 (1) state that the applicant has reason to believe and 3-37 does believe that the client has a need for major medical or dental 3-38 treatment, psychoactive medication, or a highly restrictive 3-39 procedure; 3-40 (2) specify the condition proposed to be treated; 3-41 (3) provide a description of the proposed treatment, 3-42 including the risks and benefits to the client of the proposed 3-43 treatment; 3-44 (4) state the applicant's opinion on whether the 3-45 proposed treatment promotes the client's best interest and the 3-46 grounds for the opinion; 3-47 (5) state the client's opinion about the proposed 3-48 treatment, if known; 3-49 (6) provide any other information necessary to 3-50 determine the client's best interests regarding the treatment; and 3-51 (7) state that the client does not have a guardian of 3-52 the person and does not have a parent, spouse, child, or other 3-53 person with demonstrated interest in the care and welfare of the 3-54 client who is able and willing to become the client's guardian or 3-55 surrogate decision-maker. 3-56 Sec. 597.045. NOTICE OF REVIEW OF APPLICATION FOR TREATMENT 3-57 DECISION. (a) On receipt of an application for a treatment 3-58 decision, the department shall appoint a surrogate consent 3-59 committee. 3-60 (b) The department shall notify pro bono attorney programs 3-61 if available in the area in which the client resides of the intent 3-62 to review an application for treatment decision. 3-63 (c) The ICF-MR facility with assistance from the department 3-64 shall schedule a review of the application. 3-65 (d) The ICF-MR facility shall send notice of the date, 3-66 place, and time of the review to the surrogate consent committee, 3-67 the pro bono attorney program if available in the area in which the 3-68 client resides, the client who is the subject of the application, 3-69 the client's parent, spouse, adult child, or other person known to 3-70 have a demonstrated interest in the care and welfare of the client, 4-1 and any other person as prescribed by board rule. The ICF-MR 4-2 facility shall include a copy of the application and a statement of 4-3 the committee's procedure for consideration of the application, 4-4 including the opportunity to be heard or to present evidence and to 4-5 appeal. 4-6 Sec. 597.046. PREREVIEW OF APPLICATION. (a) Before the 4-7 date of the review of an application for a treatment decision the 4-8 committee chair shall review the application to determine whether 4-9 additional information may be necessary to assist the committee in 4-10 determining the client's best interest under the circumstances. 4-11 (b) A committee member may consult with a person who might 4-12 assist in the determination of the best interest of the client or 4-13 in learning the personal opinions, beliefs, and values of the 4-14 client. 4-15 (c) If a committee that does not include in its membership 4-16 an individual listed in Section 597.043(c)(1) is to review an 4-17 application for a treatment decision about psychoactive medication, 4-18 the committee chair shall consult with a health care professional 4-19 licensed or registered in this state to assist the committee in the 4-20 determination of the best interest of the client. 4-21 Sec. 597.047. CONFIDENTIAL INFORMATION. Notwithstanding any 4-22 other state law, a person licensed by this state to provide 4-23 services related to health care or to the treatment or care of a 4-24 person with mental retardation, a developmental disability, or a 4-25 mental illness shall provide to the committee members any 4-26 information the committee requests that is relevant to the client's 4-27 need for a proposed treatment. 4-28 Sec. 597.048. REVIEW OF APPLICATION. (a) The committee 4-29 shall review the application at the time, place, and date provided 4-30 by the ICF-MR facility in the notice under Section 597.045. 4-31 (b) A person notified under Section 597.045 is entitled to 4-32 be present and to present evidence personally or through a 4-33 representative. 4-34 (c) The committee may take testimony or review evidence from 4-35 any person who might assist the committee in determining a client's 4-36 best interest. 4-37 (d) Formal rules of evidence do not apply to committee 4-38 proceedings. 4-39 (e) If practicable, the committee shall interview and 4-40 observe the client before making a determination of the client's 4-41 best interest, and in those cases when a client is not interviewed, 4-42 the reason must be documented in the client's record. 4-43 (f) At any time before the committee makes its determination 4-44 of a client's best interest under Section 597.049, the committee 4-45 chair shall suspend the review of the application for not more than 4-46 five days if any person applies for appointment as the client's 4-47 guardian of the person in accordance with the Texas Probate Code. 4-48 Sec. 597.049. DETERMINATION OF BEST INTEREST. (a) The 4-49 committee shall make a determination, based on clear and convincing 4-50 evidence, of whether the proposed treatment promotes the client's 4-51 best interest and a determination that: 4-52 (1) a person has not been appointed as the guardian of 4-53 the client's person before the sixth day after proceedings are 4-54 suspended under Section 597.048(f); or 4-55 (2) there is a medical necessity, based on clear and 4-56 convincing evidence, that the determination about the proposed 4-57 treatment occur before guardianship proceedings are completed. 4-58 (b) In making its determination of the best interest of the 4-59 client, the committee shall consider fully the preference of the 4-60 client as articulated at any time. 4-61 (c) According to its determination of the client's best 4-62 interest, the committee shall consent or refuse the treatment on 4-63 the client's behalf. 4-64 (d) The committee shall determine a date on which the 4-65 consent becomes effective. 4-66 (e) A person serving on a committee who consents or refuses 4-67 to consent on behalf of a client and who acts in good faith, 4-68 reasonably, and without malice is not criminally or civilly liable 4-69 for that action. 4-70 Sec. 597.050. NOTICE OF DETERMINATION. (a) The committee 5-1 shall issue a written opinion containing each of its determinations 5-2 and a separate statement of the committee's findings of fact. 5-3 (b) The committee shall send a copy of the committee's 5-4 opinion to: 5-5 (1) each person notified under Section 597.045; 5-6 (2) the director of the client's ICF-MR facility; and 5-7 (3) the department. 5-8 Sec. 597.051. EFFECT OF COMMITTEE'S DETERMINATION. This 5-9 chapter does not limit the availability of other lawful means of 5-10 obtaining a client's consent for medical treatment. 5-11 Sec. 597.052. SCOPE OF CONSENT. (a) The committee or the 5-12 surrogate decision-maker may consent to the release of records 5-13 related to the client's condition or treatment to facilitate 5-14 treatment to which the committee or surrogate decision-maker has 5-15 consented. 5-16 (b) The interdisciplinary team may consent to psychoactive 5-17 medication subsequent to the initial decision for administration of 5-18 psychoactive medication made by a surrogate consent committee. 5-19 (c) Unless another decision-making mechanism is provided for 5-20 by law, a client, a client's authorized surrogate decision-maker if 5-21 available, or the client's interdisciplinary team may consent to 5-22 decisions which involve risk to client protection and rights not 5-23 specifically reserved to surrogate decision-makers or surrogate 5-24 consent committees. 5-25 Sec. 597.053. APPEALS. (a) A person notified under Section 5-26 597.045 may appeal the committee's decision by filing a petition in 5-27 the probate court or court having probate jurisdiction for the 5-28 county in which the client resides or in Travis County. The person 5-29 must file the appeal not later than the 15th day after the 5-30 effective date of the committee's determination. 5-31 (b) If the hearing is to be held in a probate court in which 5-32 the judge is not a licensed attorney, the person filing the appeal 5-33 may request that the proceeding be transferred to a court with a 5-34 judge who is licensed to practice law in this state. The probate 5-35 court judge shall transfer the case after receiving the request, 5-36 and the receiving court shall hear the case as if it had been 5-37 originally filed in that court. 5-38 (c) A copy of the petition must be served on all parties of 5-39 record in the proceedings before the committee. 5-40 (d) After considering the nature of the condition of the 5-41 client, the proposed treatment, and the need for timely medical 5-42 attention, the court may issue a temporary restraining order to 5-43 facilitate the appeal. If the order is granted, the court shall 5-44 expedite the trial. 5-45 Sec. 597.054. PROCEDURES. (a) Each ICF-MR shall develop 5-46 procedures for the surrogate consent committees in accordance with 5-47 the rules adopted under Section 597.002. 5-48 (b) A committee shall phase in, during the three-year period 5-49 immediately following the effective date of this chapter, its 5-50 initial review process for applications for treatment decisions 5-51 regarding adult clients who do not have legal guardians and who are 5-52 receiving psychoactive medication. 5-53 (c) A committee is not subject to the Administrative 5-54 Procedure and Texas Register Act (Article 6252-13a, Vernon's Texas 5-55 Civil Statutes), the open meetings law, Chapter 271, Acts of the 5-56 60th Legislature, Regular Session, 1967 (Article 6252-17, Vernon's 5-57 Texas Civil Statutes), or the open records law, Chapter 424, Acts 5-58 of the 63rd Legislature, Regular Session, 1973 (Article 6252-17a, 5-59 Vernon's Texas Civil Statutes). 5-60 Sec. 597.055. EXPIRATION. This chapter expires August 31, 5-61 1997. 5-62 SECTION 2. The importance of this legislation and the 5-63 crowded condition of the calendars in both houses create an 5-64 emergency and an imperative public necessity that the 5-65 constitutional rule requiring bills to be read on three several 5-66 days in each house be suspended, and this rule is hereby suspended, 5-67 and that this Act take effect and be in force from and after its 5-68 passage, and it is so enacted. 5-69 * * * * * 5-70 Austin, 6-1 Texas 6-2 April 21, 1993 6-3 Hon. Bob Bullock 6-4 President of the Senate 6-5 Sir: 6-6 We, your Committee on Health and Human Services to which was 6-7 referred S.B. No. 1142, have had the same under consideration, and 6-8 I am instructed to report it back to the Senate with the 6-9 recommendation that it do not pass, but that the Committee 6-10 Substitute adopted in lieu thereof do pass and be printed. 6-11 Zaffirini, 6-12 Chair 6-13 * * * * * 6-14 WITNESSES 6-15 FOR AGAINST ON 6-16 ___________________________________________________________________ 6-17 Name: Carole Smith x 6-18 Representing: Tx DMHMR 6-19 City: Austin 6-20 ------------------------------------------------------------------- 6-21 Name: John W. Holterman x 6-22 Representing: Tx Silver Haired Legislation 6-23 City: San Marcos 6-24 ------------------------------------------------------------------- 6-25 Name: Phill Parmiel x 6-26 Representing: Tx Silver Haired Legislators 6-27 City: Sunrise Beach 6-28 ------------------------------------------------------------------- 6-29 Name: Spencer McGlure x 6-30 Representing: Tx Council of Comm MHMR 6-31 City: Austin 6-32 ------------------------------------------------------------------- 6-33 Name: Mary Jo Magruder x 6-34 Representing: Tx Planning Council For 6-35 City: Austin 6-36 ------------------------------------------------------------------- 6-37 Name: Maury Peterson x 6-38 Representing: Self 6-39 City: Austin 6-40 ------------------------------------------------------------------- 6-41 Name: Greg Simpson x 6-42 Representing: Self 6-43 City: Austin 6-44 ------------------------------------------------------------------- 6-45 Name: Genelle Edwards x 6-46 Representing: Private Provider Asso. of Tx 6-47 City: Corsicana 6-48 ------------------------------------------------------------------- 6-49 Name: Carolyn Bivins x 6-50 Representing: TDPRS 6-51 City: Austin 6-52 ------------------------------------------------------------------- 6-53 Name: Barrett Markland x 6-54 Representing: Advocacy, Inc. 6-55 City: Austin 6-56 ------------------------------------------------------------------- 6-57 Name: Robin Herskowitz x 6-58 Representing: Private Privider Association 6-59 City: Austin 6-60 ------------------------------------------------------------------- 6-61 Name: Jan Thompson x 6-62 Representing: Tx Health Care Asso. 6-63 City: Austin 6-64 ------------------------------------------------------------------- 6-65 FOR AGAINST ON 6-66 ___________________________________________________________________ 6-67 Name: Mike Bright x 6-68 Representing: Asso. For Retarded Citizens 6-69 City: Austin 6-70 -------------------------------------------------------------------