1-1  By:  Moncrief                                         S.B. No. 1142
    1-2        (In the Senate - Filed March 12, 1993; March 15, 1993, read
    1-3  first time and referred to Committee on Health and Human Services;
    1-4  April 21, 1993, reported adversely, with favorable Committee
    1-5  Substitute by the following vote:  Yeas 7, Nays 0; April 21, 1993,
    1-6  sent to printer.)
    1-7                            COMMITTEE VOTE
    1-8                          Yea     Nay      PNV      Absent 
    1-9        Zaffirini          x                               
   1-10        Ellis              x                               
   1-11        Madla              x                               
   1-12        Moncrief           x                               
   1-13        Nelson                                         x   
   1-14        Patterson          x                               
   1-15        Shelley            x                               
   1-16        Truan              x                               
   1-17        Wentworth                                      x   
   1-18  COMMITTEE SUBSTITUTE FOR S.B. No. 1142         By:  Moncrief, Truan
   1-19                         A BILL TO BE ENTITLED
   1-20                                AN ACT
   1-21  relating to surrogate decision making for certain clients of an
   1-22  intermediate care facility serving persons with mental retardation
   1-23  or related conditions.
   1-24        BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
   1-25        SECTION 1.  Subtitle D, Title 7, Health and Safety Code, is
   1-26  amended by adding Chapter 597 to read as follows:
   1-27       CHAPTER 597.  CAPACITY OF CLIENTS TO CONSENT TO TREATMENT
   1-28                   SUBCHAPTER A.  GENERAL PROVISIONS
   1-29        Sec. 597.001.  DEFINITIONS.  In this chapter:
   1-30              (1)  "Highly restrictive procedure" means the
   1-31  application of aversive stimuli, exclusionary time-out, physical
   1-32  restraint, or a requirement to engage in an effortful task.
   1-33              (2)  "Client" means a person receiving services in a
   1-34  community-based ICF-MR facility.
   1-35              (3)  "Committee" means a surrogate consent committee
   1-36  established under Section 597.042.
   1-37              (4)  "ICF-MR" has the meaning assigned by Section
   1-38  531.002.
   1-39              (5)  "Interdisciplinary team" means those
   1-40  interdisciplinary teams defined in the Code of Federal Regulations
   1-41  for participation in the intermediate care facilities for the
   1-42  mentally retarded.
   1-43              (6)  "Major medical and dental treatment" means a
   1-44  medical, surgical, dental, or diagnostic procedure or intervention
   1-45  that:
   1-46                    (A)  has a significant recovery period;
   1-47                    (B)  presents a significant risk;
   1-48                    (C)  employs a general anesthetic; or
   1-49                    (D)  in the opinion of the primary physician,
   1-50  involves a significant invasion of bodily integrity that requires
   1-51  the extraction of bodily fluids or an incision or that produces
   1-52  substantial pain, discomfort, or debilitation.
   1-53              (7)  "Psychoactive medication" means any medication
   1-54  prescribed for the treatment of symptoms of psychosis or other
   1-55  severe mental or emotional disorders and that is used to exercise
   1-56  an effect upon the central nervous system for the purposes of
   1-57  influencing and modifying behavior, cognition, or affective state.
   1-58              (8)  "Surrogate decision-maker" means an individual
   1-59  authorized under Section 597.041 to consent on behalf of a client
   1-60  residing in an ICF-MR facility.
   1-61        Sec. 597.002.  RULES.  The board may adopt rules necessary to
   1-62  implement this chapter not later than 180 days after its effective
   1-63  date.
   1-64        Sec. 597.003.  EXCEPTIONS.  (a)  This chapter does not apply
   1-65  to decisions for the following:
   1-66              (1)  experimental research;
   1-67              (2)  abortion;
   1-68              (3)  sterilization;
    2-1              (4)  management of client funds; and
    2-2              (5)  electroconvulsive treatment.
    2-3        (b)  This chapter does not apply to campus-based facilities
    2-4  operated by the department.
    2-5         (Sections 597.004 to 597.020 reserved for expansion
    2-6            SUBCHAPTER B. ASSESSMENT OF CLIENT'S CAPACITY;
    2-7                INCAPACITATED CLIENTS WITHOUT GUARDIANS
    2-8        Sec. 597.021.  ICF-MR ASSESSMENT OF CLIENT'S CAPACITY TO
    2-9  CONSENT TO TREATMENT.  (a)  The board by rule shall require an
   2-10  ICF-MR facility certified in this state to assess the capacity of
   2-11  each adult client without a legal guardian to make treatment
   2-12  decisions when there is evidence to suggest the individual is not
   2-13  capable of making a decision covered under this chapter.
   2-14        (b)  The rules must require the use of a uniform assessment
   2-15  process prescribed by board rule to determine a client's capacity
   2-16  to make treatment decisions.
   2-17         (Sections 597.022 to 597.040 reserved for expansion
   2-18          SUBCHAPTER C. SURROGATE CONSENT FOR ICF-MR CLIENTS
   2-19        Sec. 597.041.  SURROGATE DECISION-MAKERS.  (a)  If the
   2-20  results of an assessment conducted in accordance with Section
   2-21  597.021 indicate that an adult client who does not have a legal
   2-22  guardian or a client under 18 years of age who has no parent, legal
   2-23  guardian, or managing or possessory conservator lacks the capacity
   2-24  to make a major medical or dental treatment decision, an adult
   2-25  surrogate from the following list, in order of descending
   2-26  preference, who has decision-making capacity and who is willing to
   2-27  consent on behalf of the client may consent to major medical or
   2-28  dental treatment on behalf of the client:
   2-29              (1)  an actively involved spouse;
   2-30              (2)  an actively involved adult child who has the
   2-31  waiver and consent of all other actively involved adult children of
   2-32  the client to act as the sole decision-maker;
   2-33              (3)  an actively involved parent or stepparent;
   2-34              (4)  an actively involved adult sibling who has the
   2-35  waiver and consent of all other actively involved adult siblings of
   2-36  the client to act as the sole decision-maker; and
   2-37              (5)  any other actively involved adult relative who has
   2-38  the waiver and consent of all other actively involved adult
   2-39  relatives of the client to act as the sole decision-maker.
   2-40        (b)  Any person who consents on behalf of a client and who
   2-41  acts in good faith, reasonably, and without malice is not
   2-42  criminally or civilly liable for that action.
   2-43        (c)  Consent given by the surrogate decision-maker is valid
   2-44  and competent to the same extent as if the client had the capacity
   2-45  to consent and had consented.
   2-46        (d)  Any dispute as to the right of a party to act as a
   2-47  surrogate decision-maker may be resolved only by a court of record
   2-48  under Chapter V, Texas Probate Code.
   2-49        Sec. 597.042.  SURROGATE CONSENT COMMITTEE ESTABLISHED;
   2-50  DEPARTMENTAL SUPPORT.  (a)  For cases in which there is no guardian
   2-51  or surrogate decision-maker available, the department shall
   2-52  establish and maintain a list of individuals qualified to serve on
   2-53  a surrogate consent committee.
   2-54        (b)  The department shall provide the staff and assistance
   2-55  necessary to perform the duties prescribed by this subchapter.
   2-56        Sec. 597.043.  COMMITTEE MEMBERSHIP.  (a)  A surrogate
   2-57  consent committee considering an application for a treatment
   2-58  decision shall be composed of at least three but not more than five
   2-59  members, and consent on behalf of clients shall be based on
   2-60  consensus of the members.
   2-61        (b)  A committee considering an application for a treatment
   2-62  decision must consist of individuals who:
   2-63              (1)  are not employees of the facility;
   2-64              (2)  do not provide contractual services to the
   2-65  facility;
   2-66              (3)  do not manage or exercise supervisory control
   2-67  over:
   2-68                    (A)  the facility or the employees of the
   2-69  facility; or
   2-70                    (B)  any company, corporation, or other legal
    3-1  entity that manages or exercises control over the facility or the
    3-2  employees of the facility;
    3-3              (4)  do not have a financial interest in the facility
    3-4  or in any company, corporation, or other legal entity that has a
    3-5  financial interest in the facility; and
    3-6              (5)  are not related to the client.
    3-7        (c)  The list of qualified individuals from which committee
    3-8  members are drawn shall include:
    3-9              (1)  health care professionals licensed or registered
   3-10  in this state who have specialized training in medicine,
   3-11  psychopharmacology, or psychology;
   3-12              (2)  persons with mental retardation or parents,
   3-13  siblings, spouses, or children of a person with mental retardation;
   3-14              (3)  attorneys licensed in this state who have
   3-15  knowledge of legal issues of concern to persons with mental
   3-16  retardation or to the families of persons with mental retardation;
   3-17              (4)  members of private organizations that advocate on
   3-18  behalf of persons with mental retardation; and
   3-19              (5)  persons with demonstrated expertise or interest in
   3-20  the care and treatment of persons with mental disabilities.
   3-21        (d)  At least one member of the committee must be an
   3-22  individual listed in Subsection (c)(1) or (5).
   3-23        (e)  A member of a committee shall participate in education
   3-24  and training as required by department rule.
   3-25        (f)  Each committee shall designate a committee chair.
   3-26        Sec. 597.044.  APPLICATION FOR TREATMENT DECISION.  (a)  If
   3-27  the results of the assessment conducted in accordance with Section
   3-28  597.021 indicate that a client who does not have a legal guardian
   3-29  or surrogate decision-maker lacks the capacity to make a treatment
   3-30  decision about major medical or dental treatment, psychoactive
   3-31  medication, or a highly restrictive procedure, the ICF-MR facility
   3-32  must file an application for a treatment decision with the
   3-33  department.
   3-34        (b)  An application must be in the form prescribed by the
   3-35  department, must be signed by the applicant, and must:
   3-36              (1)  state that the applicant has reason to believe and
   3-37  does believe that the client has a need for major medical or dental
   3-38  treatment, psychoactive medication, or a highly restrictive
   3-39  procedure;
   3-40              (2)  specify the condition proposed to be treated;
   3-41              (3)  provide a description of the proposed treatment,
   3-42  including the risks and benefits to the client of the proposed
   3-43  treatment;
   3-44              (4)  state the applicant's opinion on whether the
   3-45  proposed treatment promotes the client's best interest and the
   3-46  grounds for the opinion;
   3-47              (5)  state the client's opinion about the proposed
   3-48  treatment, if known;
   3-49              (6)  provide any other information necessary to
   3-50  determine the client's best interests regarding the treatment; and
   3-51              (7)  state that the client does not have a guardian of
   3-52  the person and does not have a parent, spouse, child, or other
   3-53  person with demonstrated interest in the care and welfare of the
   3-54  client who is able and willing to become the client's guardian or
   3-55  surrogate decision-maker.
   3-56        Sec. 597.045.  NOTICE OF REVIEW OF APPLICATION FOR TREATMENT
   3-57  DECISION.  (a)  On receipt of an application for a treatment
   3-58  decision, the department shall appoint a surrogate consent
   3-59  committee.
   3-60        (b)  The department shall notify pro bono attorney programs
   3-61  if available in the area in which the client resides of the intent
   3-62  to review an application for treatment decision.
   3-63        (c)  The ICF-MR facility with assistance from the department
   3-64  shall schedule a review of the application.
   3-65        (d)  The ICF-MR facility shall send notice of the date,
   3-66  place, and time of the review to the surrogate consent committee,
   3-67  the pro bono attorney program if available in the area in which the
   3-68  client resides, the client who is the subject of the application,
   3-69  the client's parent, spouse, adult child, or other person known to
   3-70  have a demonstrated interest in the care and welfare of the client,
    4-1  and any other person as prescribed by board rule.  The ICF-MR
    4-2  facility shall include a copy of the application and a statement of
    4-3  the committee's procedure for consideration of the application,
    4-4  including the opportunity to be heard or to present evidence and to
    4-5  appeal.
    4-6        Sec. 597.046.  PREREVIEW OF APPLICATION.  (a)  Before the
    4-7  date of the review of an application for a treatment decision the
    4-8  committee chair shall review the application to determine whether
    4-9  additional information may be necessary to assist the committee in
   4-10  determining the client's best interest under the circumstances.
   4-11        (b)  A committee member may consult with a person who might
   4-12  assist in the determination of the best interest of the client or
   4-13  in learning the personal opinions, beliefs, and values of the
   4-14  client.
   4-15        (c)  If a committee that does not include in its membership
   4-16  an individual listed in Section 597.043(c)(1) is to review an
   4-17  application for a treatment decision about psychoactive medication,
   4-18  the committee chair shall consult with a health care professional
   4-19  licensed or registered in this state to assist the committee in the
   4-20  determination of the best interest of the client.
   4-21        Sec. 597.047.  CONFIDENTIAL INFORMATION.  Notwithstanding any
   4-22  other state law, a person licensed by this state to provide
   4-23  services related to health care or to the treatment or care of a
   4-24  person with mental retardation, a developmental disability, or a
   4-25  mental illness shall provide to the committee members any
   4-26  information the committee requests that is relevant to the client's
   4-27  need for a proposed treatment.
   4-28        Sec. 597.048.  REVIEW OF APPLICATION.  (a)  The committee
   4-29  shall review the application at the time, place, and date provided
   4-30  by the ICF-MR facility in the notice under Section 597.045.
   4-31        (b)  A person notified under Section 597.045 is entitled to
   4-32  be present and to present evidence personally or through a
   4-33  representative.
   4-34        (c)  The committee may take testimony or review evidence from
   4-35  any person who might assist the committee in determining a client's
   4-36  best interest.
   4-37        (d)  Formal rules of evidence do not apply to committee
   4-38  proceedings.
   4-39        (e)  If practicable, the committee shall interview and
   4-40  observe the client before making a determination of the client's
   4-41  best interest, and in those cases when a client is not interviewed,
   4-42  the reason must be documented in the client's record.
   4-43        (f)  At any time before the committee makes its determination
   4-44  of a client's best interest under Section 597.049, the committee
   4-45  chair shall suspend the review of the application for not more than
   4-46  five days if any person applies for appointment as the client's
   4-47  guardian of the person in accordance with the Texas Probate Code.
   4-48        Sec. 597.049.  DETERMINATION OF BEST INTEREST.  (a)  The
   4-49  committee shall make a determination, based on clear and convincing
   4-50  evidence, of whether the proposed treatment promotes the client's
   4-51  best interest and a determination that:
   4-52              (1)  a person has not been appointed as the guardian of
   4-53  the client's person before the sixth day after proceedings are
   4-54  suspended under Section 597.048(f); or
   4-55              (2)  there is a medical necessity, based on clear and
   4-56  convincing evidence, that the determination about the proposed
   4-57  treatment occur before guardianship proceedings are completed.
   4-58        (b)  In making its determination of the best interest of the
   4-59  client, the committee shall consider fully the preference of the
   4-60  client as articulated at any time.
   4-61        (c)  According to its determination of the client's best
   4-62  interest, the committee shall consent or refuse the treatment on
   4-63  the client's behalf.
   4-64        (d)  The committee shall determine a date on which the
   4-65  consent becomes effective.
   4-66        (e)  A person serving on a committee who consents or refuses
   4-67  to consent on behalf of a client and who acts in good faith,
   4-68  reasonably, and without malice is not criminally or civilly liable
   4-69  for that action.
   4-70        Sec. 597.050.  NOTICE OF DETERMINATION.  (a)  The committee
    5-1  shall issue a written opinion containing each of its determinations
    5-2  and a separate statement of the committee's findings of fact.
    5-3        (b)  The committee shall send a copy of the committee's
    5-4  opinion to:
    5-5              (1)  each person notified under Section 597.045;
    5-6              (2)  the director of the client's ICF-MR facility; and
    5-7              (3)  the department.
    5-8        Sec. 597.051.  EFFECT OF COMMITTEE'S DETERMINATION.  This
    5-9  chapter does not limit the availability of other lawful means of
   5-10  obtaining a client's consent for medical treatment.
   5-11        Sec. 597.052.  SCOPE OF CONSENT.  (a)  The committee or the
   5-12  surrogate decision-maker may consent to the release of records
   5-13  related to the client's condition or treatment to facilitate
   5-14  treatment to which the committee or surrogate decision-maker has
   5-15  consented.
   5-16        (b)  The interdisciplinary team may consent to psychoactive
   5-17  medication subsequent to the initial decision for administration of
   5-18  psychoactive medication made by a surrogate consent committee.
   5-19        (c)  Unless another decision-making mechanism is provided for
   5-20  by law, a client, a client's authorized surrogate decision-maker if
   5-21  available, or the client's interdisciplinary team may consent to
   5-22  decisions which involve risk to client protection and rights not
   5-23  specifically reserved to surrogate decision-makers or surrogate
   5-24  consent committees.
   5-25        Sec. 597.053.  APPEALS.  (a)  A person notified under Section
   5-26  597.045 may appeal the committee's decision by filing a petition in
   5-27  the probate court or court having probate jurisdiction for the
   5-28  county in which the client resides or in Travis County.  The person
   5-29  must file the appeal not later than the 15th day after the
   5-30  effective date of the committee's determination.
   5-31        (b)  If the hearing is to be held in a probate court in which
   5-32  the judge is not a licensed attorney, the person filing the appeal
   5-33  may request that the proceeding be transferred to a court with a
   5-34  judge who is licensed to practice law in this state.  The probate
   5-35  court judge shall transfer the case after receiving the request,
   5-36  and the receiving court shall hear the case as if it had been
   5-37  originally filed in that court.
   5-38        (c)  A copy of the petition must be served on all parties of
   5-39  record in the proceedings before the committee.
   5-40        (d)  After considering the nature of the condition of the
   5-41  client, the proposed treatment, and the need for timely medical
   5-42  attention, the court may issue a temporary restraining order to
   5-43  facilitate the appeal.  If the order is granted, the court shall
   5-44  expedite the trial.
   5-45        Sec. 597.054.  PROCEDURES.  (a)  Each ICF-MR shall develop
   5-46  procedures for the surrogate consent committees in accordance with
   5-47  the rules adopted under Section 597.002.
   5-48        (b)  A committee shall phase in, during the three-year period
   5-49  immediately following the effective date of this chapter, its
   5-50  initial review process for applications for treatment decisions
   5-51  regarding adult clients who do not have legal guardians and who are
   5-52  receiving psychoactive medication.
   5-53        (c)  A committee is not subject to the Administrative
   5-54  Procedure and Texas Register Act (Article 6252-13a, Vernon's Texas
   5-55  Civil Statutes), the open meetings law, Chapter 271, Acts of the
   5-56  60th Legislature, Regular Session, 1967 (Article 6252-17, Vernon's
   5-57  Texas Civil Statutes), or the open records law, Chapter 424, Acts
   5-58  of the 63rd Legislature, Regular Session, 1973 (Article 6252-17a,
   5-59  Vernon's Texas Civil Statutes).
   5-60        Sec. 597.055.  EXPIRATION.  This chapter expires August 31,
   5-61  1997.
   5-62        SECTION 2.  The importance of this legislation and the
   5-63  crowded condition of the calendars in both houses create an
   5-64  emergency and an imperative public necessity that the
   5-65  constitutional rule requiring bills to be read on three several
   5-66  days in each house be suspended, and this rule is hereby suspended,
   5-67  and that this Act take effect and be in force from and after its
   5-68  passage, and it is so enacted.
   5-69                               * * * * *
   5-70                                                         Austin,
    6-1  Texas
    6-2                                                         April 21, 1993
    6-3  Hon. Bob Bullock
    6-4  President of the Senate
    6-5  Sir:
    6-6  We, your Committee on Health and Human Services to which was
    6-7  referred S.B. No. 1142, have had the same under consideration, and
    6-8  I am instructed to report it back to the Senate with the
    6-9  recommendation that it do not pass, but that the Committee
   6-10  Substitute adopted in lieu thereof do pass and be printed.
   6-11                                                         Zaffirini,
   6-12  Chair
   6-13                               * * * * *
   6-14                               WITNESSES
   6-15                                                  FOR   AGAINST  ON
   6-16  ___________________________________________________________________
   6-17  Name:  Carole Smith                                            x
   6-18  Representing:  Tx DMHMR
   6-19  City:  Austin
   6-20  -------------------------------------------------------------------
   6-21  Name:  John W. Holterman                         x
   6-22  Representing:  Tx Silver Haired Legislation
   6-23  City:  San Marcos
   6-24  -------------------------------------------------------------------
   6-25  Name:  Phill Parmiel                             x
   6-26  Representing:  Tx Silver Haired Legislators
   6-27  City:  Sunrise Beach
   6-28  -------------------------------------------------------------------
   6-29  Name:  Spencer McGlure                           x
   6-30  Representing:  Tx Council of Comm MHMR
   6-31  City:  Austin
   6-32  -------------------------------------------------------------------
   6-33  Name:  Mary Jo Magruder                          x
   6-34  Representing:  Tx Planning Council For
   6-35  City:  Austin
   6-36  -------------------------------------------------------------------
   6-37  Name:  Maury Peterson                            x
   6-38  Representing:  Self
   6-39  City:  Austin
   6-40  -------------------------------------------------------------------
   6-41  Name:  Greg Simpson                              x
   6-42  Representing:  Self
   6-43  City:  Austin
   6-44  -------------------------------------------------------------------
   6-45  Name:  Genelle Edwards                                         x
   6-46  Representing:  Private Provider Asso. of Tx
   6-47  City:  Corsicana
   6-48  -------------------------------------------------------------------
   6-49  Name:  Carolyn Bivins                                          x
   6-50  Representing:  TDPRS
   6-51  City:  Austin
   6-52  -------------------------------------------------------------------
   6-53  Name:  Barrett Markland                          x
   6-54  Representing:  Advocacy, Inc.
   6-55  City:  Austin
   6-56  -------------------------------------------------------------------
   6-57  Name:  Robin Herskowitz                          x
   6-58  Representing:  Private Privider Association
   6-59  City:  Austin
   6-60  -------------------------------------------------------------------
   6-61  Name:  Jan Thompson                              x
   6-62  Representing:  Tx Health Care Asso.
   6-63  City:  Austin
   6-64  -------------------------------------------------------------------
   6-65                                                  FOR   AGAINST  ON
   6-66  ___________________________________________________________________
   6-67  Name:  Mike Bright                               x
   6-68  Representing:  Asso. For Retarded Citizens
   6-69  City:  Austin
   6-70  -------------------------------------------------------------------