By Van de Putte                                  H.B. No. 263

      75R53 PB-D                           

                                A BILL TO BE ENTITLED

 1-1                                   AN ACT

 1-2     relating to restrictions on the use of certain genetic information

 1-3     by insurers.

 1-4           BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:

 1-5           SECTION 1.  Subchapter E, Chapter 21, Insurance Code, is

 1-6     amended by adding Article 21.73 to read as follows:

 1-7           Art. 21.73.  USE OF GENETIC TESTING INFORMATION BY INSURERS

 1-8           Sec. 1.  DEFINITIONS.  In this article:

 1-9                 (1)  "Genetic characteristic" means a scientifically or

1-10     medically identifiable gene or chromosome, or an alteration of such

1-11     a gene or chromosome, that:

1-12                       (A)  is:

1-13                             (i)  known to be a cause of a disease or

1-14     disorder; or

1-15                             (ii)  determined to be associated with a

1-16     statistically increased risk of development of a disease or

1-17     disorder; and

1-18                       (B)  may be asymptomatic of a disease or

1-19     disorder.

1-20                 (2)  "Genetic information" means information about

1-21     genes, gene products, or inherited characteristics derived from an

1-22     individual or family member.

1-23                 (3)  "Genetic services" means health services used to

1-24     obtain, assess, and interpret genetic information for:

 2-1                       (A)  diagnostic purposes;

 2-2                       (B)  therapeutic services; or

 2-3                       (C)  genetic education and counseling.

 2-4                 (4)  "Genetic test" means a laboratory test that is

 2-5     used to:

 2-6                       (A)  determine the presence or absence of genetic

 2-7     characteristics; or

 2-8                       (B)  diagnose a genetic characteristic.

 2-9                 (5)  "Insurer" includes:

2-10                       (A)  a company authorized to engage in the

2-11     business of insurance in this state under Chapter 3 of this code;

2-12                       (B)  a group hospital service corporation under

2-13     Chapter 20 of this code;

2-14                       (C)  a health maintenance organization under the

2-15     Texas Health Maintenance Organization Act (Chapter 20A, Vernon's

2-16     Texas Insurance Code);

2-17                       (D)  a nonprofit hospital or other entity that

2-18     provides health care insurance, group disability insurance, or

2-19     long-term care insurance coverage and is subject to the

2-20     jurisdiction of the commissioner;

2-21                       (E)  an insurance agent regulated under

2-22     Subchapter A, Chapter 21, of this code;

2-23                       (F)  a third party administrator regulated under

2-24     Article 21.07-6 of this code; and

2-25                       (G)  any other person engaged in the business of

2-26     health insurance in this state who is subject to regulation under

2-27     this code or the other insurance laws of this state.

 3-1           Sec. 2.  USE OF GENETIC INFORMATION BY INSURERS.  (a) An

 3-2     insurer, in the writing of a health insurance policy or contract or

 3-3     an evidence of coverage, may not:

 3-4                 (1)  use genetic information, genetic testing, or

 3-5     genetic services to reject, deny, limit, cancel, refuse to renew,

 3-6     increase the premiums for, or otherwise adversely affect

 3-7     eligibility for or coverage under the policy or contract or

 3-8     evidence of coverage; or

 3-9                 (2)  request or require an individual who is an insured

3-10     or an applicant for insurance to disclose to the insurer genetic

3-11     information regarding that individual or a member of that

3-12     individual's family.

3-13           (b)  If an insurer requests that an applicant for insurance

3-14     other than health insurance submit to a genetic test in connection

3-15     with the insurance application:

3-16                 (1)  the person or entity who performs the test may

3-17     disclose the results of the test to the applicant on the

3-18     applicant's request,  as well as to the insurer;

3-19                 (2)  the insurer must disclose the proposed use of

3-20     those results by the insurer to the applicant; and

3-21                 (3)  the insurer must obtain the written authorization

3-22     of the applicant for that use.

3-23           (c)  An insurer may not use the results of a genetic test

3-24     conducted in accordance with Subsection (b) of this section as an

3-25     inducement for the purchase of insurance coverage.

3-26           (d)  An insurer may not discriminate in the fees,

3-27     commissions, or other compensation paid to an insurance agent for

 4-1     writing or renewing a health insurance policy or contract or an

 4-2     evidence of coverage for an individual because genetic

 4-3     characteristics of that individual may be associated with a

 4-4     disability in the individual or the individual's descendants.

 4-5           Sec. 3.  INFORMATION CONFIDENTIAL; EXCEPTIONS.  (a)  Except

 4-6     as provided by Subsection (c) of this section, genetic information

 4-7     is confidential and privileged regardless of the source of the

 4-8     information.  A person or entity who holds that information may not

 4-9     disclose or be compelled to disclose, by subpoena or otherwise,

4-10     genetic information about an individual unless the disclosure is

4-11     specifically authorized by the individual as provided by Subsection

4-12     (b) of this section.  This subsection applies to a redisclosure of

4-13     genetic information by a secondary recipient of the information

4-14     after disclosure of the information by an initial recipient.

4-15           (b)  An individual or the legal representative of an

4-16     individual may authorize the disclosure of genetic information

4-17     relating to that individual through a written authorization that

4-18     includes:

4-19                 (1)  a description of the information to be disclosed;

4-20                 (2)  the name of the person or entity to whom the

4-21     disclosure is made; and

4-22                 (3)  the purpose for the disclosure.

4-23           (c)  Subject to Subchapter G, Chapter 411, Government Code,

4-24     genetic information relating to an individual may be disclosed

4-25     without the authorization required under Subsection (b) if the

4-26     disclosure is:

4-27                 (1)  authorized under a state or federal criminal law

 5-1     relating to:

 5-2                       (A)  the identification of individuals; or

 5-3                       (B)  a criminal or juvenile proceeding, an

 5-4     inquest, or a child fatality review by a multidisciplinary child

 5-5     abuse team;

 5-6                 (2)  required under a specific order of a state or

 5-7     federal court;

 5-8                 (3)  authorized under a state or federal law to

 5-9     establish paternity;

5-10                 (4)  made to furnish genetic information relating to a

5-11     decedent to the blood relatives of the decedent for the purpose of

5-12     medical diagnosis; or

5-13                 (5)  to identify a decedent.

5-14           Sec. 4.  UNFAIR PRACTICE; REMEDIES.  An insurer  who requires

5-15     an individual to submit to a genetic test or who uses or reveals

5-16     genetic information in violation of the requirements of this

5-17     article commits an unfair practice under Article 21.21 of this code

5-18     and is liable to that individual as provided by that article.

5-19           SECTION 2.  This Act takes effect September 1, 1997, and

5-20     applies only to an insurance policy or evidence of coverage that is

5-21     delivered, issued for delivery, or renewed on or after January 1,

5-22     1998.  A policy or evidence of coverage that is delivered, issued

5-23     for delivery, or renewed before January 1, 1998, is governed by the

5-24     law as it existed immediately before the effective date of this

5-25     Act, and that law is continued in effect for that purpose.

5-26           SECTION 3.  The importance of this legislation and the

5-27     crowded condition of the calendars in both houses create an

 6-1     emergency and an imperative public necessity that the

 6-2     constitutional rule requiring bills to be read on three several

 6-3     days in each house be suspended, and this rule is hereby suspended.