By Van de Putte H.B. No. 263 75R53 PB-D A BILL TO BE ENTITLED 1-1 AN ACT 1-2 relating to restrictions on the use of certain genetic information 1-3 by insurers. 1-4 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: 1-5 SECTION 1. Subchapter E, Chapter 21, Insurance Code, is 1-6 amended by adding Article 21.73 to read as follows: 1-7 Art. 21.73. USE OF GENETIC TESTING INFORMATION BY INSURERS 1-8 Sec. 1. DEFINITIONS. In this article: 1-9 (1) "Genetic characteristic" means a scientifically or 1-10 medically identifiable gene or chromosome, or an alteration of such 1-11 a gene or chromosome, that: 1-12 (A) is: 1-13 (i) known to be a cause of a disease or 1-14 disorder; or 1-15 (ii) determined to be associated with a 1-16 statistically increased risk of development of a disease or 1-17 disorder; and 1-18 (B) may be asymptomatic of a disease or 1-19 disorder. 1-20 (2) "Genetic information" means information about 1-21 genes, gene products, or inherited characteristics derived from an 1-22 individual or family member. 1-23 (3) "Genetic services" means health services used to 1-24 obtain, assess, and interpret genetic information for: 2-1 (A) diagnostic purposes; 2-2 (B) therapeutic services; or 2-3 (C) genetic education and counseling. 2-4 (4) "Genetic test" means a laboratory test that is 2-5 used to: 2-6 (A) determine the presence or absence of genetic 2-7 characteristics; or 2-8 (B) diagnose a genetic characteristic. 2-9 (5) "Insurer" includes: 2-10 (A) a company authorized to engage in the 2-11 business of insurance in this state under Chapter 3 of this code; 2-12 (B) a group hospital service corporation under 2-13 Chapter 20 of this code; 2-14 (C) a health maintenance organization under the 2-15 Texas Health Maintenance Organization Act (Chapter 20A, Vernon's 2-16 Texas Insurance Code); 2-17 (D) a nonprofit hospital or other entity that 2-18 provides health care insurance, group disability insurance, or 2-19 long-term care insurance coverage and is subject to the 2-20 jurisdiction of the commissioner; 2-21 (E) an insurance agent regulated under 2-22 Subchapter A, Chapter 21, of this code; 2-23 (F) a third party administrator regulated under 2-24 Article 21.07-6 of this code; and 2-25 (G) any other person engaged in the business of 2-26 health insurance in this state who is subject to regulation under 2-27 this code or the other insurance laws of this state. 3-1 Sec. 2. USE OF GENETIC INFORMATION BY INSURERS. (a) An 3-2 insurer, in the writing of a health insurance policy or contract or 3-3 an evidence of coverage, may not: 3-4 (1) use genetic information, genetic testing, or 3-5 genetic services to reject, deny, limit, cancel, refuse to renew, 3-6 increase the premiums for, or otherwise adversely affect 3-7 eligibility for or coverage under the policy or contract or 3-8 evidence of coverage; or 3-9 (2) request or require an individual who is an insured 3-10 or an applicant for insurance to disclose to the insurer genetic 3-11 information regarding that individual or a member of that 3-12 individual's family. 3-13 (b) If an insurer requests that an applicant for insurance 3-14 other than health insurance submit to a genetic test in connection 3-15 with the insurance application: 3-16 (1) the person or entity who performs the test may 3-17 disclose the results of the test to the applicant on the 3-18 applicant's request, as well as to the insurer; 3-19 (2) the insurer must disclose the proposed use of 3-20 those results by the insurer to the applicant; and 3-21 (3) the insurer must obtain the written authorization 3-22 of the applicant for that use. 3-23 (c) An insurer may not use the results of a genetic test 3-24 conducted in accordance with Subsection (b) of this section as an 3-25 inducement for the purchase of insurance coverage. 3-26 (d) An insurer may not discriminate in the fees, 3-27 commissions, or other compensation paid to an insurance agent for 4-1 writing or renewing a health insurance policy or contract or an 4-2 evidence of coverage for an individual because genetic 4-3 characteristics of that individual may be associated with a 4-4 disability in the individual or the individual's descendants. 4-5 Sec. 3. INFORMATION CONFIDENTIAL; EXCEPTIONS. (a) Except 4-6 as provided by Subsection (c) of this section, genetic information 4-7 is confidential and privileged regardless of the source of the 4-8 information. A person or entity who holds that information may not 4-9 disclose or be compelled to disclose, by subpoena or otherwise, 4-10 genetic information about an individual unless the disclosure is 4-11 specifically authorized by the individual as provided by Subsection 4-12 (b) of this section. This subsection applies to a redisclosure of 4-13 genetic information by a secondary recipient of the information 4-14 after disclosure of the information by an initial recipient. 4-15 (b) An individual or the legal representative of an 4-16 individual may authorize the disclosure of genetic information 4-17 relating to that individual through a written authorization that 4-18 includes: 4-19 (1) a description of the information to be disclosed; 4-20 (2) the name of the person or entity to whom the 4-21 disclosure is made; and 4-22 (3) the purpose for the disclosure. 4-23 (c) Subject to Subchapter G, Chapter 411, Government Code, 4-24 genetic information relating to an individual may be disclosed 4-25 without the authorization required under Subsection (b) if the 4-26 disclosure is: 4-27 (1) authorized under a state or federal criminal law 5-1 relating to: 5-2 (A) the identification of individuals; or 5-3 (B) a criminal or juvenile proceeding, an 5-4 inquest, or a child fatality review by a multidisciplinary child 5-5 abuse team; 5-6 (2) required under a specific order of a state or 5-7 federal court; 5-8 (3) authorized under a state or federal law to 5-9 establish paternity; 5-10 (4) made to furnish genetic information relating to a 5-11 decedent to the blood relatives of the decedent for the purpose of 5-12 medical diagnosis; or 5-13 (5) to identify a decedent. 5-14 Sec. 4. UNFAIR PRACTICE; REMEDIES. An insurer who requires 5-15 an individual to submit to a genetic test or who uses or reveals 5-16 genetic information in violation of the requirements of this 5-17 article commits an unfair practice under Article 21.21 of this code 5-18 and is liable to that individual as provided by that article. 5-19 SECTION 2. This Act takes effect September 1, 1997, and 5-20 applies only to an insurance policy or evidence of coverage that is 5-21 delivered, issued for delivery, or renewed on or after January 1, 5-22 1998. A policy or evidence of coverage that is delivered, issued 5-23 for delivery, or renewed before January 1, 1998, is governed by the 5-24 law as it existed immediately before the effective date of this 5-25 Act, and that law is continued in effect for that purpose. 5-26 SECTION 3. The importance of this legislation and the 5-27 crowded condition of the calendars in both houses create an 6-1 emergency and an imperative public necessity that the 6-2 constitutional rule requiring bills to be read on three several 6-3 days in each house be suspended, and this rule is hereby suspended.