1-1 AN ACT 1-2 relating to the operation of certain Medicaid waiver programs for 1-3 children with disabilities or special health care needs. 1-4 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: 1-5 SECTION 1. Subchapter B, Chapter 32, Human Resources Code, 1-6 is amended by adding Section 32.052 to read as follows: 1-7 Sec. 32.052. WAIVER PROGRAMS FOR CHILDREN WITH DISABILITIES 1-8 OR SPECIAL HEALTH CARE NEEDS. (a) This section applies to 1-9 services under the medical assistance program provided to children 1-10 younger than 23 years of age with disabilities or special health 1-11 care needs under a waiver granted under Section 1915(c) of the 1-12 federal Social Security Act (42 U.S.C. Section 1396n(c)). 1-13 (b) In this section, "permanency planning" means a 1-14 philosophy and planning process designed to achieve family support 1-15 through the facilitation of a permanent living arrangement that has 1-16 as its primary feature an enduring and nurturing parental 1-17 relationship. 1-18 (c) In developing and providing services subject to this 1-19 section, the department shall: 1-20 (1) fully assess a child at the time the child applies 1-21 for assistance to determine all appropriate services for the child 1-22 under the medical assistance program, including both waiver and 1-23 nonwaiver services; 1-24 (2) ensure that permanency planning is implemented to 2-1 identify and establish the family support necessary to maintain a 2-2 child's permanent living arrangement with a family; 2-3 (3) implement a transition and referral process to 2-4 prevent breaks in services when a child is leaving a medical 2-5 assistance waiver program or moving between service delivery 2-6 systems due to a change in the child's disability status or needs, 2-7 aging out of the current delivery system, or moving between 2-8 geographic areas within the state; 2-9 (4) identify and provide core services addressing a 2-10 child's developmental needs and the needs of the child's family to 2-11 strengthen and maintain the child's family; 2-12 (5) provide for comprehensive coordination and use of 2-13 available services and resources in a manner that ensures support 2-14 for families in keeping their children at home; 2-15 (6) ensure that eligibility requirements, assessments 2-16 for service needs, and other components of service delivery are 2-17 designed to be fair and equitable for all families, including 2-18 families with parents who work outside the home; and 2-19 (7) provide for a broad array of service options and a 2-20 reasonable choice of service providers. 2-21 (d) To ensure that services subject to this section are cost 2-22 neutral and not duplicative of other services provided under the 2-23 medical assistance program, the department shall coordinate the 2-24 provision of services subject to this section with services 2-25 provided under the Texas Health Steps Comprehensive Care Program. 2-26 (e) The Health and Human Services Commission shall establish 2-27 an advisory committee to provide recommendations on the delivery of 3-1 services subject to this section to the commission and each 3-2 appropriate agency providing those services. The advisory 3-3 committee must meet regularly and must include parents of children 3-4 receiving services subject to this section and representatives of 3-5 appropriate advocacy organizations. The advisory committee shall 3-6 provide recommendations relating to: 3-7 (1) administration of services subject to this section 3-8 in a manner that eliminates duplication of assessment, evaluation, 3-9 and services provided under the Texas Health Steps Comprehensive 3-10 Care Program; 3-11 (2) coordination of services in a manner that provides 3-12 accessibility to comprehensive services without gaps in service 3-13 delivery; 3-14 (3) procedures for obtaining authorization for 3-15 services subject to this section and other nonwaiver services under 3-16 the medical assistance program, including procedures for appealing 3-17 denials of service; 3-18 (4) encouragement of the use of waivers under Section 3-19 1915(c) of the federal Social Security Act (42 U.S.C. Section 3-20 1396n(c)) to provide the state with the flexibility to provide 3-21 services outside the scope, amount, or duration of nonwaiver 3-22 services available under the medical assistance program; 3-23 (5) determination of policies that ensure that a child 3-24 receiving services subject to this section has access to 3-25 comprehensive waiver services for adults when the child ages and 3-26 loses eligibility for services for children; 3-27 (6) ensuring that the medical assistance waiver 4-1 programs serve the interest of the child and support families; 4-2 (7) encouraging medical assistance waiver services to 4-3 have flexibility to provide services that are outside of the scope, 4-4 amount, or duration of state plan services; and 4-5 (8) evaluation of the quality and effectiveness of 4-6 services subject to this section. 4-7 (f) In the manner provided by the General Appropriations 4-8 Act, a member of the advisory committee established under 4-9 Subsection (e) who is the parent of a child receiving services 4-10 subject to this section is entitled to reimbursement of travel 4-11 expenses incurred by the member while conducting the business of 4-12 the committee. 4-13 SECTION 2. If before implementing any provision of this Act 4-14 a state agency determines that a waiver or authorization from a 4-15 federal agency is necessary for implementation, the state agency 4-16 shall request the waiver or authorization and may delay 4-17 implementing that provision until the waiver or authorization is 4-18 granted. 4-19 SECTION 3. The importance of this legislation and the 4-20 crowded condition of the calendars in both houses create an 4-21 emergency and an imperative public necessity that the 4-22 constitutional rule requiring bills to be read on three several 4-23 days in each house be suspended, and this rule is hereby suspended, 4-24 and that this Act take effect and be in force from and after its 4-25 passage, and it is so enacted. _______________________________ _______________________________ President of the Senate Speaker of the House I certify that H.B. No. 2873 was passed by the House on April 29, 1999, by the following vote: Yeas 139, Nays 0, 2 present, not voting; and that the House concurred in Senate amendments to H.B. No. 2873 on May 26, 1999, by the following vote: Yeas 144, Nays 0, 2 present, not voting. _______________________________ Chief Clerk of the House I certify that H.B. No. 2873 was passed by the Senate, with amendments, on May 24, 1999, by the following vote: Yeas 30, Nays 0. _______________________________ Secretary of the Senate APPROVED: _____________________ Date _____________________ Governor