By Capelo H.B. No. 3155
Line and page numbers may not match official copy.
Bill not drafted by TLC or Senate E&E.
A BILL TO BE ENTITLED
1-1 AN ACT
1-2 relating to the establishment of a Texas Pediatric Diabetes
1-3 Research Working Group in the Texas Department of Health.
1-4 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
1-5 SECTION 1. SHORT TITLE. This act may be cited as the "Texas
1-6 Pediatric Diabetes Research Act of 2001."
1-7 SECTION 2. FINDINGS. The legislature finds that:
1-8 One out of 300 school aged children in America has diagnosed
1-9 diabetes.
1-10 Pediatric diabetes rates are growing rapidly in both Type 1
1-11 (juvenile) diabetes, which is increasing 3-5% per year; and Type 2
1-12 in children has tripled between 1993 and 1998 and continues to
1-13 escalate. Diabetes is manifesting at younger ages, both Type 1 and
1-14 Type 2, with many new cases being diagnosed before age 5, the
1-15 resultant costs for long term care and the potential of increasing
1-16 numbers of earlier complications is staggering.
1-17 Diabetes in children is one of the costliest and most
1-18 devastating chronic childhood conditions according to the Texas
1-19 Diabetes Council's January 2001 study, "Diabetes in Childhood and
1-20 Adolescence."
1-21 In 1997, 700,676 adults in Texas (5.1% of the adult
1-22 population) had diagnosed diabetes. An additional 5,104,725
1-23 children and adults in Texas were at increased risk for undiagnosed
2-1 diabetes because of the risk factors of age, obesity, and sedentary
2-2 lifestyle. People in Texas with diabetes suffer from many diabetes
2-3 related complications or conditions. In 1997, this included 1,119
2-4 new cases of blindness; 4,974 lower extremity amputations; 2,816
2-5 new cases of end-stage renal disease.
2-6 In 1997, there were 252,345 diabetes related hospitalizations
2-7 in the State of Texas. Diabetes contributed to the death of 13,061
2-8 residents of Texas in 1997 The cost of diabetes in Texas is
2-9 enormous. The direct cost (medical care) and indirect cost (lost
2-10 productivity and premature mortality) of diabetes in Texas total
2-11 over $9.2 billion in 1997. Children who are Hispanic,
2-12 African-American or Native American descent are disproportionately
2-13 affected, by diabetes and are two to three times more likely to
2-14 develop diabetes than the general population.
2-15 SECTION 3. ESTABLISHMENT OF A PEDIATRIC DIABETES RESEARCH
2-16 WORKING GROUP IN THE TEXAS DEPARTMENT OF HEALTH The Commissioner
2-17 of the Texas Department of Health, in consultation with the Texas
2-18 Diabetes Council, shall establish a Pediatric Diabetes
2-19 Research-Plan Group, in this subsection referred to as the "Working
2-20 Group." The Working Group shall conduct analysis for the purpose
2-21 of providing advice to the Legislature and Governor on the
2-22 development of a plan to investigate the scientific research
2-23 opportunities for pediatric diabetes in the State of Texas; assess
2-24 resources, talent and diabetes burden, both economic and health
2-25 related. The Working Group shall draft a comprehensive report with
2-26 accompanying research funding recommendations.
3-1 (1) COMPOSITION
3-2 (a) GENERALLY. The Working Group shall in accordance
3-3 with this subsection be composed of not more than 15 members
3-4 appointed by the Commissioner of the Texas Department of Health in
3-5 consultation with the Texas Diabetes Council. It shall be
3-6 understood that special attention be given to selection of
3-7 representatives with clinical expertise in the areas of diabetes
3-8 and opthalmology, pediatric endocrinology, child health and
3-9 development, neuropathy, genetics, cardiology and immunology.
3-10 (b) PARTICIPATION OF SELECT ENTITIES. The members of
3-11 the Working Group shall include:
3-12 (1) The current Chairman of the Texas Diabetes
3-13 Council or his/her appointed representative;
3-14 (2) One or more representatives from the Texas
3-15 Department of Health;
3-16 (3) One or more representatives from the
3-17 Juvenile Diabetes Research Foundation;
3-18 (4) One or more representatives from the
3-19 American Diabetes Association;
3-20 (5) One or more research professionals from
3-21 Texas academic or biomedical research institutions currently
3-22 involved in diabetes research
3-23 (6) One or more representatives from the health
3-24 care industry.
3-25 (c) CHAIR. The Commissioner of the Texas Department
3-26 of Health with recommendation from the Texas Diabetes Council shall
4-1 select a member of the Working Group to serve as the chair of the
4-2 group. The chair shall be an individual who was appointed to the
4-3 Group from among individuals who are not officers or employees of
4-4 the state.
4-5 (1). The Working Group must meet at least four
4-6 times as called by the Chair. The Working Group will work in
4-7 conjunction with a professional meeting facilitator with experience
4-8 in strategic planning.
4-9 (2). The Working Group may be compensated for
4-10 travel and materials only.
4-11 (d) DATE CERTAIN FOR APPOINTMENTS. The
4-12 Commissioner of the Texas Department of Health shall complete
4-13 appointments to the Working Group not later than the expiration of
4-14 the 90 day period beginning on the date of enactment of this Act.
4-15 (e) TERMINATION. The Working Group terminates
4-16 upon the expiration of the 30 day period beginning on the date on
4-17 which the plan referred to in Section 3 is submitted to the
4-18 legislature and Governor.