By: Lucio S.B. No. 1456
Line and page numbers may not match official copy.
Bill not drafted by TLC or Senate E&E.
A BILL TO BE ENTITLED
1-1 AN ACT
1-2 relating to the establishment of a Texas Pediatric Diabetes
1-3 Research Working Group in the Texas Department of Health.
1-4 BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
1-5 Section 1. SHORT TITLE.
1-6 This act may be cited as the "Texas Pediatric Diabetes
1-7 Research Act of 2001."
1-8 Section 2. FINDINGS.
1-9 The legislature finds that:
1-10 One out of 300 school aged children in America has diagnosed
1-11 diabetes.
1-12 Pediatric diabetes rates are growing rapidly both in Type 1
1-13 (juvenile) diabetes, which is increasing 3-5% per year; and Type 2
1-14 in children has tripled between 1993 and 1998 and continues to
1-15 escalate. Diabetes is manifesting at younger ages, both Type 1 and
1-16 Type 2, with many new cases being diagnosed before age 5, the
1-17 resultant costs for long term care and the potential of increasing
1-18 numbers of earlier complications is staggering.
1-19 Diabetes in children is one of the costliest and most devastating
1-20 chronic childhood conditions according to the Texas Diabetes
1-21 Council's January 2001 study, "Diabetes in Childhood and
1-22 Adolescence."
1-23 In 1997, 700,676 adults in Texas (5.1% of the adult population) had
2-1 diagnosed diabetes. An additional 5,104,725 children and adults in
2-2 Texas were at increased risk for undiagnosed diabetes because of
2-3 the risk factors of age, obesity and sedentary lifestyle.
2-4 People in Texas with diabetes suffer from many diabetes related
2-5 complications or conditions. In 1997, this included 1,119 new
2-6 cases of blindness; 4,974 lower extremity amputations; 2,816 new
2-7 cases of end-stage renal disease.
2-8 In 1997, there were 252,345 diabetes related hospitalizations in
2-9 the State of Texas.
2-10 Diabetes contributed to the death of 13,061 residents of Texas in
2-11 1997
2-12 The cost of diabetes in Texas is enormous. The direct cost
2-13 (medical care) and indirect cost (lost productivity and premature
2-14 mortality) of diabetes in Texas total over $9.2 billion in 1997.
2-15 Children who are Hispanic, African-American or Native American
2-16 decent are disproportionately affected by diabetes and are two to
2-17 three times more likely to develop diabetes than the general
2-18 population.
2-19 Section 3. ESTABLISHMENT OF A PEDIATRIC DIABETES RESEARCH WORKING
2-20 GROUP IN THE TEXAS DEPARTMENT OF HEALTH
2-21 The Commissioner of the Texas Department of Health, in consultation
2-22 with the Texas Diabetes Council, shall establish a Pediatric
2-23 Diabetes Research-Plan Group, in this subsection referred to as the
2-24 "Working Group." The Working Group shall conduct analysis for the
2-25 purpose of providing advice to the Legislature and Governor on the
2-26 development of a plan to investigate the scientific research
3-1 opportunities for pediatric diabetes in the State of Texas; assess
3-2 resources, talent and diabetes burden, both economic and health
3-3 related. The Working Group shall draft a comprehensive report with
3-4 accompanying research funding recommendations.
3-5 (1) COMPOSITION
3-6 (a) GENERALLY. The Working Group shall in accordance
3-7 with this subsection be composed of not more than 15 members
3-8 appointed by the Commissioner of the Texas Department of Health in
3-9 consultation with the Texas Diabetes Council. It shall be
3-10 understood that special attention be given to selection of
3-11 representatives with clinical expertise in the areas of diabetes
3-12 and ophthalmology, pediatric endocrinology, child health and
3-13 development, neuropathy, genetics, cardiology and immunology.
3-14 (b) PARTICIPATION OF SELECT ENTITIES. The members of
3-15 the Working Group shall include:
3-16 (1) The current Chairman of the Texas Diabetes
3-17 Council or his/her appointed representative;
3-18 (2) One or more representatives from the Texas
3-19 Department of Health;
3-20 (3) One or more representatives from the
3-21 Juvenile Diabetes Research Foundation;
3-22 (4) One or more representatives from the
3-23 American Diabetes Association;
3-24 (5) One or more research professionals from
3-25 Texas academic or biomedical research institutions currently
3-26 involved in diabetes research
4-1 (6) One or more representatives from the health
4-2 care industry.
4-3 (c) CHAIR. The Commissioner of the Texas Department of
4-4 Health with recommendation from the Texas Diabetes Council shall
4-5 select a member of the Working Group to serve as the chair of the
4-6 group. The chair shall be an individual who was appointed to the
4-7 Group from among individuals who are not officers or employees of
4-8 the state.
4-9 (1). The Working Group must meet at least four
4-10 times as called by the Chair. The Working Group will work in
4-11 conjunction with a professional meeting facilitator with experience
4-12 in strategic planning.
4-13 (2). The Working Group may be compensated for
4-14 travel and materials only.
4-15 (d) DATE CERTAIN FOR APPOINTMENTS. The
4-16 Commissioner of the Texas Department of Health shall complete
4-17 appointments to the Working Group not later than the expiration of
4-18 the 90 day period beginning on the date of enactment of this Act.
4-19 (e) TERMINATION. The Working Group terminates
4-20 upon the expiration of the 30 day period beginning on the date on
4-21 which the plan referred to in Section 3 is submitted to the
4-22 legislature and Governor.