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Amend CSHB 1672 (House Committee Report) as follows:
(1) On page 1, strike lines 7 through 18, and substitute the
following:
Sec. 33.0111. DISCLOSURE. (a) The department shall develop
a disclosure statement that clearly discloses to the parent,
managing conservator, or guardian of a newborn child subjected to
screening tests under Section 33.011:
(1) that the department or a laboratory established or
approved by the department under Section 33.016 may retain for use
by the department or laboratory genetic material used to conduct
the newborn screening tests and discloses how the material is
managed; and
(2) that the parent, managing conservator, or
guardian may limit the use of the genetic material by providing to
the department in accordance with Section 33.0112 a written
statement prohibiting the department or laboratory from retaining
the genetic material.
(2) On page 1, between lines 18 and 19, insert the
following:
(b) The disclosure statement required by Subsection (a)
must be included on the form developed by the department to inform
parents about newborn screening. The disclosure statement must:
(1) be on a separate sheet of the form; and
(2) be presented together with the written statement
described by Subsection (a)(2) in a format that allows a parent,
managing conservator, or guardian of a newborn child to either:
(A) sign, detach, and mail a portion of the form
to the department to require the department or laboratory to
destroy the genetic material on completion of the newborn screening
tests; or
(B) check a box and sign next to the box on the
form a statement indicating the parent, managing conservator, or
guardian is requiring the department or laboratory to destroy the
genetic material on completion of the newborn screening tests;
(3) include instructions on how to complete the
portions of the form described by Subdivisions (2)(A) and (B);
(4) include the department's mailing address; and
(5) be made available to a parent, managing
conservator, or guardian of a newborn child through alternative
sources.
(3) On page 1, line 19, strike "(b)" and substitute "(c)".
(4) On page 2, between lines 1 and 2, insert the following:
(d) The department shall establish procedures for a
physician attending a newborn child or the person attending the
delivery of a newborn child to provide verification to the
department that the physician or person has provided the parent,
managing conservator, or guardian of the newborn child the
disclosure required under this section.
(5) On page 2, line 4, between "department a" and "written",
insert "signed".
(6) On page 2, line 7, after the period, insert the
following:
A parent, managing conservator, or guardian may file the written
statement on a form provided by the department.
(7) On page 4, between lines 11 and 12, insert the
following:
SECTION 3. (a) The speaker of the house of representatives
shall charge a committee of members selected by the speaker or a
house standing committee to conduct an interim study on newborn
screening in this state.
(b) The committee designated under Subsection (a) of this
section shall:
(1) study the timeframe and procedures for the
disclosure required by Chapter 33, Health and Safety Code, to the
parent, managing conservator, or guardian of a newborn child;
(2) analyze whether procedures should be developed by
the Department of State Health Services to provide confirmation to
a parent, managing conservator, or guardian of a newborn child that
a stored specimen has been destroyed as required by a written
statement submitted by the parent, managing conservator, or
guardian; and
(3) study standardization of the disclosure process
for health care facilities in this state.
(c) Not later than December 15, 2010, the committee
designated under Subsection (a) of this section, shall file a
report on the results of the interim study conducted under this
section with both houses of the legislature.
(8) On page 4, line 15, strike "may" and substitute "shall".
(9) Renumber remaining SECTIONS of the bill accordingly.