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A BILL TO BE ENTITLED
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AN ACT
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relating to newborn screening and the creation of the Newborn |
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Screening Advisory Committee. |
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BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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SECTION 1. This Act may be cited as "Greyson's Law" in |
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memory of Greyson Morris. |
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SECTION 2. Section 33.011(a-1), Health and Safety Code, is |
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amended to read as follows: |
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(a-1) Except as provided by this subsection and to [To] the |
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extent funding is available for the screening, the department shall |
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require newborn screening tests to screen for disorders listed in |
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the core [uniform] panel and in the secondary targets of the uniform |
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newborn screening panel [conditions] recommended in the 2005 report |
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by the American College of Medical Genetics entitled "Newborn |
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Screening: Toward a Uniform Screening Panel and System" or another |
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report determined by the department to provide more stringent [more
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appropriate] newborn screening guidelines to protect the health and |
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welfare of this state's newborns. The department, with the advice |
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of the Newborn Screening Advisory Committee, may require additional |
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newborn screening tests under this subsection to screen for other |
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disorders or conditions. The department may exclude from the |
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newborn screening tests required under this subsection screenings |
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for galactose epimerase and galactokinase. |
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SECTION 3. Subchapter B, Chapter 33, Health and Safety |
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Code, is amended by adding Section 33.017 to read as follows: |
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Sec. 33.017. NEWBORN SCREENING ADVISORY COMMITTEE. (a) |
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The department shall establish the Newborn Screening Advisory |
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Committee. |
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(b) The advisory committee consists of members appointed by |
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the commissioner of state health services. The advisory committee |
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must include the following members: |
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(1) health care providers; |
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(2) a hospital representative; |
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(3) persons who have family members affected by a |
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condition for which newborn screening is or may be required under |
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this subchapter; and |
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(4) persons who are involved in the delivery of |
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newborn screening services, follow-up, or treatment in this state. |
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(c) The advisory committee shall advise the department |
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regarding strategic planning, policy, rules, and services related |
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to newborn screening and additional newborn screening tests. |
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(d) The advisory committee shall adopt bylaws governing the |
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committee's operations. |
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(e) The advisory committee may appoint subcommittees. |
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(f) The advisory committee shall meet at least three times |
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each year and at other times at the call of the commissioner of |
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state health services. |
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(g) A member of the advisory committee is not entitled to |
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compensation, but is entitled to reimbursement for travel or other |
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expenses incurred by the member while conducting the business of |
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the advisory committee, as provided by the General Appropriations |
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Act. |
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(h) The advisory committee is not subject to Chapter 2110, |
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Government Code. |
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SECTION 4. (a) As soon as practicable after the effective |
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date of this Act, the commissioner of state health services shall |
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appoint members to the Newborn Screening Advisory Committee as |
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required under Section 33.017, Health and Safety Code, as added by |
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this Act. |
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(b) Notwithstanding Section 33.011, Health and Safety Code, |
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as amended by this Act, a physician or person attending the delivery |
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of a newborn child is not required to subject the child to the |
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additional newborn screening tests required under Section |
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33.011(a-1), Health and Safety Code, as amended by this Act, until |
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January 1, 2010. |
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SECTION 5. This Act takes effect September 1, 2009. |