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  By: Pierson, et al. (Senate Sponsor - Uresti) H.B. No. 1795
         (In the Senate - Received from the House May 15, 2009;
  May 18, 2009, read first time and referred to Committee on Health
  and Human Services; May 21, 2009, reported favorably by the
  following vote:  Yeas 9, Nays 0; May 21, 2009, sent to printer.)
 
 
A BILL TO BE ENTITLED
 
AN ACT
 
  relating to newborn screening and the creation of the Newborn
  Screening Advisory Committee.
         BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
         SECTION 1.  This Act may be cited as "Greyson's Law" in
  memory of Greyson Morris.
         SECTION 2.  Section 33.011(a-1), Health and Safety Code, is
  amended to read as follows:
         (a-1)  Except as provided by this subsection and to [To] the
  extent funding is available for the screening, the department shall
  require newborn screening tests to screen for disorders listed in
  the core [uniform] panel and in the secondary targets of the uniform
  newborn screening panel [conditions] recommended in the 2005 report
  by the American College of Medical Genetics entitled "Newborn
  Screening: Toward a Uniform Screening Panel and System" or another
  report determined by the department to provide more stringent [more
  appropriate] newborn screening guidelines to protect the health and
  welfare of this state's newborns. The department, with the advice
  of the Newborn Screening Advisory Committee, may require additional
  newborn screening tests under this subsection to screen for other
  disorders or conditions. The department may exclude from the
  newborn screening tests required under this subsection screenings
  for galactose epimerase and galactokinase.
         SECTION 3.  Subchapter B, Chapter 33, Health and Safety
  Code, is amended by adding Section 33.017 to read as follows:
         Sec. 33.017.  NEWBORN SCREENING ADVISORY COMMITTEE. (a)
  The department shall establish the Newborn Screening Advisory
  Committee.
         (b)  The advisory committee consists of members appointed by
  the commissioner of state health services. The advisory committee
  must include the following members:
               (1)  health care providers;
               (2)  a hospital representative;
               (3)  persons who have family members affected by a
  condition for which newborn screening is or may be required under
  this subchapter; and
               (4)  persons who are involved in the delivery of
  newborn screening services, follow-up, or treatment in this state.
         (c)  The advisory committee shall advise the department
  regarding strategic planning, policy, rules, and services related
  to newborn screening and additional newborn screening tests.
         (d)  The advisory committee shall adopt bylaws governing the
  committee's operations.
         (e)  The advisory committee may appoint subcommittees.
         (f)  The advisory committee shall meet at least three times
  each year and at other times at the call of the commissioner of
  state health services.
         (g)  A member of the advisory committee is not entitled to
  compensation, but is entitled to reimbursement for travel or other
  expenses incurred by the member while conducting the business of
  the advisory committee, as provided by the General Appropriations
  Act.
         (h)  The advisory committee is not subject to Chapter 2110,
  Government Code.
         SECTION 4.  (a) As soon as practicable after the effective
  date of this Act, the commissioner of state health services shall
  appoint members to the Newborn Screening Advisory Committee as
  required under Section 33.017, Health and Safety Code, as added by
  this Act.
         (b)  Notwithstanding Section 33.011, Health and Safety Code,
  as amended by this Act, a physician or person attending the delivery
  of a newborn child is not required to subject the child to the
  additional newborn screening tests required under Section
  33.011(a-1), Health and Safety Code, as amended by this Act, until
  January 1, 2010.
         SECTION 5.  This Act takes effect September 1, 2009.
 
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