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A BILL TO BE ENTITLED
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AN ACT
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relating to the provision of information by health and human |
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services agencies to assist children with velocardiofacial |
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syndrome. |
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BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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SECTION 1. Subchapter D, Chapter 117, Human Resources Code, |
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is amended by adding Section 117.076 to read as follows: |
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Sec. 117.076. INFORMATION REGARDING VELOCARDIOFACIAL |
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SYNDROME. (a) The commission shall ensure that each health and |
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human services agency that provides intervention services to young |
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children is provided with information developed by the commission |
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regarding velocardiofacial syndrome. |
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(b) Each health and human services agency described by |
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Subsection (a) shall provide the information regarding |
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velocardiofacial syndrome to appropriate health care coordinators |
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and therapists and to parents of a child who is known by the agency |
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to have at least two of the following conditions: |
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(1) hypotonicity; |
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(2) communication delay; |
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(3) articulation disorder; |
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(4) resonance disorder; |
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(5) nasal regurgitation during feeding as an infant |
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with no history of a cleft palate; |
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(6) recurrent ear infections as well as diagnosis of |
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cardiac anomaly, feeding disorder, cleft palate, or submucosal |
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cleft palate; or |
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(7) fine motor or gross motor skills delay. |
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(c) The commission shall develop the information required |
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under Subsection (a) using medically accurate, peer-reviewed |
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literature. The information must include: |
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(1) an explanation of velocardiofacial syndrome |
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symptoms, diagnosis, and treatment options; |
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(2) information on relevant state agency and nonprofit |
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resources, parent support groups, and available Medicaid waiver |
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programs; and |
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(3) a recommendation for follow-up with a health care |
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provider for evaluation of the underlying etiology and an |
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explanation that the existence of any of the conditions listed in |
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Subsection (b) will not necessarily result in a diagnosis of |
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velocardiofacial syndrome. |
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(d) The executive commissioner may adopt rules as necessary |
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to implement this section. |
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SECTION 2. This Act takes effect September 1, 2009. |