By: Lucio  S.B. No. 1612
         (In the Senate - Filed March 10, 2009; March 17, 2009, read
  first time and referred to Committee on Health and Human Services;
  April 17, 2009, reported adversely, with favorable Committee
  Substitute by the following vote:  Yeas 9, Nays 0; April 17, 2009,
  sent to printer.)
 
  COMMITTEE SUBSTITUTE FOR S.B. No. 1612 By:  Deuell
 
 
A BILL TO BE ENTITLED
 
AN ACT
 
  relating to the provision of information by health and human
  services agencies to assist children with velocardiofacial
  syndrome.
         BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
         SECTION 1.  Subchapter D, Chapter 117, Human Resources Code,
  is amended by adding Section 117.076 to read as follows:
         Sec. 117.076.  INFORMATION REGARDING VELOCARDIOFACIAL
  SYNDROME. (a)  The commission shall ensure that each health and
  human services agency that provides intervention services to young
  children is provided with information developed by the commission
  regarding velocardiofacial syndrome.
         (b)  Each health and human services agency described by
  Subsection (a) shall provide the information regarding
  velocardiofacial syndrome to appropriate health care coordinators
  and therapists and to parents of a child who is known by the agency
  to have at least two of the following conditions:
               (1)  hypotonicity;
               (2)  communication delay;
               (3)  articulation disorder;
               (4)  resonance disorder;
               (5)  nasal regurgitation during feeding as an infant
  with no history of a cleft palate;
               (6)  recurrent ear infections as well as diagnosis of
  cardiac anomaly, feeding disorder, cleft palate, or submucosal
  cleft palate; or
               (7)  fine motor or gross motor skills delay.
         (c)  The commission shall develop the information required
  under Subsection (a) using medically accurate, peer-reviewed
  literature.  The information must include:
               (1)  an explanation of velocardiofacial syndrome
  symptoms, diagnosis, and treatment options; and
               (2)  information on relevant state agency and nonprofit
  resources, parent support groups, and available Medicaid waiver
  programs.
         (d)  The executive commissioner may adopt rules as necessary
  to implement this section.
         SECTION 2.  This Act takes effect September 1, 2009.
 
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