| TO: | Honorable Lois W. Kolkhorst, Chair, House Committee on Public Health |
| FROM: | John S. O'Brien, Director, Legislative Budget Board |
| IN RE: | HB2294 by Gattis (Relating to the establishment of the undiagnosed disease registry.), As Introduced |
| Fiscal Year | Probable Net Positive/(Negative) Impact to General Revenue Related Funds |
|---|---|
| 2010 | ($1,015,036) |
| 2011 | ($777,346) |
| 2012 | ($794,390) |
| 2013 | ($779,470) |
| 2014 | ($796,586) |
| Fiscal Year | Probable Savings/(Cost) from General Revenue Fund 1 |
Probable Savings/(Cost) from Appropriated Receipts 666 |
Probable Revenue Gain/(Loss) from Appropriated Receipts 666 |
Change in Number of State Employees from FY 2009 |
|---|---|---|---|---|
| 2010 | ($1,015,036) | ($73,805) | $73,805 | 6.8 |
| 2011 | ($777,346) | ($16,675) | $16,675 | 9.0 |
| 2012 | ($794,390) | ($16,675) | $16,675 | 9.0 |
| 2013 | ($779,470) | ($16,675) | $16,675 | 9.0 |
| 2014 | ($796,586) | ($16,675) | $16,675 | 9.0 |
The bill would require the Department of State Health Services (DSHS) to create an undiagnosed disease registry. The registry must be a central data bank that serves as a tool in the early recognition, prevention, cure, and control of undiagnosed diseases. The registry must include a record of the cases of undiagnosed diseases that result in death and information concerning the undiagnosed diseases for the recognition, prevention, cure, and control of undiagnosed diseases. DSHS must store samples of tissue corresponding to individual registry records. The bill requires DSHS to submit an annual report to the legislature on the undiagnosed disease registry.
It is assumed that 6.8 full-time equivalents (FTEs) in fiscal year 2010 and 9 FTEs would be required to create and maintain the registry. This includes one Program Specialist I to code the death certificates, three Public Health Technicians I to collect the samples, one Laboratory Technologist I to store and catalog the samples, one Research Specialist III to link medical records systems and record processing and matching of the records, one Epidemiologist III to write reports and perform data analysis, one Programmer IV to build and maintain web-based registry, and one Medical Research Specialist who will be the scientific lead and the director of the registry. The FTE associated costs are estimated to be $662,841 in fiscal year 2010 and approximately $794,021 in fiscal year 2011 and beyond; these costs include salary, benefits, travel, and other associated expenses.
DSHS estimates it will need 3 ultra cold freezers to store the tissue samples-one freezer in fiscal year 2010, one in fiscal year 2012, and one more in fiscal year 2014 at a cost of $16,000 each.
DSHS is estimated $410,000 is needed to build the web-based registry in fiscal year 2010.
DSHS estimates that there will be 2,900 deaths due to an undiagnosed disease. It is assumed that 50 percent of the samples would not be voluntarily submitted by the health facilities and would be charged a $50 penalty per sample. In the first year 1,450 samples would be charged the $50 penalty and a revenue gain of $72,500 would be realized to the Appropriated Receipts Fund. It is estimated that 290 samples would be charged a penalty for a revenue gain of $14,500 in fiscal year 2011 and beyond. Additional revenue from late fees is estimated to be $1,305 in fiscal year 2010 and $2,175 in fiscal year 2011 and behond. It is expected that these revenue gains will be used to offset the cost to the General Revenue Fund.
DSHS estimates it would take 4,000 hours to create a web-based registry at a cost of $100 per hour for a total of $400,000 in fiscal year 2010. DSHS also estimates it would need $10,000 to purchase necessary software in fiscal year 2010.
| Source Agencies: | 537 State Health Services, Department of
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| LBB Staff: | JOB, CL, BM, MB
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