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        |  | A BILL TO BE ENTITLED | 
      
        |  | AN ACT | 
      
        |  | relating to advance directives or health care or treatment | 
      
        |  | decisions made by or on behalf of patients. | 
      
        |  | BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: | 
      
        |  | SECTION 1.  This Act may be cited as the Patient and Family | 
      
        |  | Treatment Choice Rights Act of 2013. | 
      
        |  | SECTION 2.  The purpose of this Act is to protect the right | 
      
        |  | of patients and their families to decide whether and under what | 
      
        |  | circumstances to choose or reject life-sustaining treatment. This | 
      
        |  | Act amends the applicable provisions of the Advance Directives Act | 
      
        |  | (Chapter 166, Health and Safety Code) to ensure that, when an | 
      
        |  | attending physician is unwilling to respect a patient's advance | 
      
        |  | directive or a patient's or family's decision to choose the | 
      
        |  | treatment necessary to prevent the patient's death, | 
      
        |  | life-sustaining medical treatment will be provided until the | 
      
        |  | patient can be transferred to a health care provider willing to | 
      
        |  | honor the directive or treatment decision. | 
      
        |  | SECTION 3.  Section 166.045(c), Health and Safety Code, is | 
      
        |  | amended to read as follows: | 
      
        |  | (c)  If an attending physician refuses to comply with a | 
      
        |  | directive or treatment decision to provide life-sustaining | 
      
        |  | treatment to a patient and  does not wish to follow the procedure | 
      
        |  | established under Section 166.046,  life-sustaining treatment | 
      
        |  | shall be provided to the patient[ , but only] until [a reasonable  | 
      
        |  | opportunity has been afforded for the transfer of] the patient is | 
      
        |  | transferred to another physician or health care facility willing to | 
      
        |  | comply with the directive or treatment decision. | 
      
        |  | SECTION 4.  Sections 166.046(a) and (e), Health and Safety | 
      
        |  | Code, are amended to read as follows: | 
      
        |  | (a)  If an attending physician refuses to honor a patient's | 
      
        |  | advance directive or a health care or treatment decision made by or | 
      
        |  | on behalf of a patient, other than a directive or decision to | 
      
        |  | provide artificial nutrition and hydration to the patient, the | 
      
        |  | physician's refusal shall be reviewed by an ethics or medical | 
      
        |  | committee.  The attending physician may not be a member of that | 
      
        |  | committee.  The patient shall be given life-sustaining treatment | 
      
        |  | during the review. | 
      
        |  | (e)  If the patient or the person responsible for the health | 
      
        |  | care decisions of the patient is requesting life-sustaining | 
      
        |  | treatment that the attending physician has decided and the review | 
      
        |  | process has affirmed is inappropriate treatment, the patient shall | 
      
        |  | be given available life-sustaining treatment pending transfer | 
      
        |  | under Subsection (d). The patient is responsible for any costs | 
      
        |  | incurred in transferring the patient to another facility.  [ The  | 
      
        |  | physician and the health care facility are not obligated to provide  | 
      
        |  | life-sustaining treatment after the 10th day after the written  | 
      
        |  | decision required under Subsection (b) is provided to the patient  | 
      
        |  | or the person responsible for the health care decisions of the  | 
      
        |  | patient unless ordered to do so under Subsection (g).] | 
      
        |  | SECTION 5.  Section 166.051, Health and Safety Code, is | 
      
        |  | amended to read as follows: | 
      
        |  | Sec. 166.051.  LEGAL RIGHT OR RESPONSIBILITY NOT AFFECTED. | 
      
        |  | This subchapter does not impair or supersede any legal right or | 
      
        |  | responsibility a person may have to effect the withholding or | 
      
        |  | withdrawal of life-sustaining treatment in a lawful manner, | 
      
        |  | provided that if an attending physician or health care facility is | 
      
        |  | unwilling to honor a patient's advance directive or a treatment | 
      
        |  | decision to provide life-sustaining treatment, life-sustaining | 
      
        |  | treatment must [ is required to] be provided to the patient in | 
      
        |  | accordance with this chapter[ , but only until a reasonable  | 
      
        |  | opportunity has been afforded for transfer of the patient to  | 
      
        |  | another physician or health care facility willing to comply with  | 
      
        |  | the advance directive or treatment decision]. | 
      
        |  | SECTION 6.  Sections 166.052(a) and (b), Health and Safety | 
      
        |  | Code, are amended to read as follows: | 
      
        |  | (a)  In cases in which the attending physician refuses to | 
      
        |  | honor an advance directive or treatment decision requesting the | 
      
        |  | provision of life-sustaining treatment, other than a directive or | 
      
        |  | decision to provide artificial nutrition and hydration, the | 
      
        |  | statement required by Section 166.046(b)(3)(A) [ 166.046(b)(2)(A)] | 
      
        |  | shall be in substantially the following form: | 
      
        |  | When There Is A Disagreement About Medical Treatment:  The | 
      
        |  | Physician Recommends Against Life-Sustaining Treatment That You | 
      
        |  | Wish To Continue | 
      
        |  | You have been given this information because you have | 
      
        |  | requested life-sustaining treatment,* other than artificial | 
      
        |  | nutrition and hydration, which the attending physician believes is | 
      
        |  | not appropriate.  This information is being provided to help you | 
      
        |  | understand state law, your rights, and the resources available to | 
      
        |  | you in such circumstances.  It outlines the process for resolving | 
      
        |  | disagreements about treatment among patients, families, and | 
      
        |  | physicians.  It is based upon Section 166.046 of the Texas Advance | 
      
        |  | Directives Act, codified in Chapter 166 of the Texas Health and | 
      
        |  | Safety Code. | 
      
        |  | When an attending physician refuses to comply with an advance | 
      
        |  | directive or other request for life-sustaining treatment, other | 
      
        |  | than artificial nutrition and hydration, because of the physician's | 
      
        |  | judgment that the treatment would be inappropriate, the case will | 
      
        |  | be reviewed by an ethics or medical committee.  Life-sustaining | 
      
        |  | treatment will be provided through the review. | 
      
        |  | You will receive notification of this review at least 48 | 
      
        |  | hours before a meeting of the committee related to your case.  You | 
      
        |  | are entitled to attend the meeting.  With your agreement, the | 
      
        |  | meeting may be held sooner than 48 hours, if possible. | 
      
        |  | You are entitled to receive a written explanation of the | 
      
        |  | decision reached during the review process. | 
      
        |  | If after this review process both the attending physician and | 
      
        |  | the ethics or medical committee conclude that life-sustaining | 
      
        |  | treatment, other than artificial nutrition and hydration, is | 
      
        |  | inappropriate and yet you continue to request such treatment, then | 
      
        |  | the following procedure will occur: | 
      
        |  | 1.  The physician, with the help of the health care facility, | 
      
        |  | will assist you in finding [ trying to find] a physician and facility | 
      
        |  | willing to provide the requested treatment. | 
      
        |  | 2.  You are being given a list of health care providers and | 
      
        |  | referral groups that have volunteered their readiness to consider | 
      
        |  | accepting transfer, or to assist in locating a provider willing to | 
      
        |  | accept transfer, maintained by the Department of State Health | 
      
        |  | Services [ Texas Health Care Information Council].  You may wish to | 
      
        |  | contact providers or referral groups on the list or others of your | 
      
        |  | choice to get help in arranging a transfer. | 
      
        |  | 3.  The patient will [ continue to] be given life-sustaining | 
      
        |  | treatment  until he or she can be transferred to a willing provider | 
      
        |  | [ for up to 10 days from the time you were given the committee's  | 
      
        |  | written decision that life-sustaining treatment is not  | 
      
        |  | appropriate]. | 
      
        |  | 4.  If a transfer can be arranged, the patient will be | 
      
        |  | responsible for the costs of the transfer. | 
      
        |  | [ 5.  If a provider cannot be found willing to give the  | 
      
        |  | requested treatment within 10 days, life-sustaining treatment may  | 
      
        |  | be withdrawn unless a court of law has granted an extension. | 
      
        |  | [ 6.  You may ask the appropriate district or county court to  | 
      
        |  | extend the 10-day period if the court finds that there is a  | 
      
        |  | reasonable expectation that a physician or health care facility  | 
      
        |  | willing to provide life-sustaining treatment will be found if the  | 
      
        |  | extension is granted.] | 
      
        |  | *"Life-sustaining treatment" means treatment that, based on | 
      
        |  | reasonable medical judgment, sustains the life of a patient and | 
      
        |  | without which the patient will die.  The term includes both | 
      
        |  | life-sustaining medications and artificial life support, such as | 
      
        |  | mechanical breathing machines, kidney dialysis treatment, and | 
      
        |  | artificial nutrition and hydration.  The term does not include the | 
      
        |  | administration of pain management medication or the performance of | 
      
        |  | a medical procedure considered to be necessary to provide comfort | 
      
        |  | care, or any other medical care provided to alleviate a patient's | 
      
        |  | pain. | 
      
        |  | (b)  In cases in which the attending physician refuses to | 
      
        |  | comply with an advance directive or treatment decision requesting | 
      
        |  | the withholding or withdrawal of life-sustaining treatment, the | 
      
        |  | statement required by Section 166.046(b)(3)(A) shall be in | 
      
        |  | substantially the following form: | 
      
        |  | When There Is A Disagreement About Medical Treatment:  The | 
      
        |  | Physician Recommends Life-Sustaining Treatment That You Wish To | 
      
        |  | Stop | 
      
        |  | You have been given this information because you have | 
      
        |  | requested the withdrawal or withholding of life-sustaining | 
      
        |  | treatment*, other than artificial nutrition and hydration, and the | 
      
        |  | attending physician refuses to comply with that request.  The | 
      
        |  | information is being provided to help you understand state law, | 
      
        |  | your rights, and the resources available to you in such | 
      
        |  | circumstances.  It outlines the process for resolving disagreements | 
      
        |  | about treatment among patients, families, and physicians.  It is | 
      
        |  | based upon Section 166.046 of the Texas Advance Directives Act, | 
      
        |  | codified in Chapter 166 of the Texas Health and Safety Code. | 
      
        |  | When an attending physician refuses to comply with an advance | 
      
        |  | directive or other request for withdrawal or withholding of | 
      
        |  | life-sustaining treatment for any reason, the case will be reviewed | 
      
        |  | by an ethics or medical committee.  Life-sustaining treatment will | 
      
        |  | be provided through the review. | 
      
        |  | You will receive notification of this review at least 48 | 
      
        |  | hours before a meeting of the committee related to your case.  You | 
      
        |  | are entitled to attend the meeting.  With your agreement, the | 
      
        |  | meeting may be held sooner than 48 hours, if possible. | 
      
        |  | You are entitled to receive a written explanation of the | 
      
        |  | decision reached during the review process. | 
      
        |  | If you or the attending physician do not agree with the | 
      
        |  | decision reached during the review process, and the attending | 
      
        |  | physician still refuses to comply with your request to withhold or | 
      
        |  | withdraw life-sustaining treatment, then the following procedure | 
      
        |  | will occur: | 
      
        |  | 1.  The physician, with the help of the health care facility, | 
      
        |  | will assist you in finding [ trying to find] a physician and facility | 
      
        |  | willing to withdraw or withhold the life-sustaining treatment. | 
      
        |  | 2.  You are being given a list of health care providers and | 
      
        |  | referral groups that have volunteered their readiness to consider | 
      
        |  | accepting transfer, or to assist in locating a provider willing to | 
      
        |  | accept transfer, maintained by the Department of State Health | 
      
        |  | Services [ Texas Health Care Information Council].  You may wish to | 
      
        |  | contact providers or referral groups on the list or others of your | 
      
        |  | choice to get help in arranging a transfer. | 
      
        |  | *"Life-sustaining treatment" means treatment that, based on | 
      
        |  | reasonable medical judgment, sustains the life of a patient and | 
      
        |  | without which the patient will die.  The term includes both | 
      
        |  | life-sustaining medications and artificial life support, such as | 
      
        |  | mechanical breathing machines, kidney dialysis treatment, and | 
      
        |  | artificial nutrition and hydration.  The term does not include the | 
      
        |  | administration of pain management medication or the performance of | 
      
        |  | a medical procedure considered to be necessary to provide comfort | 
      
        |  | care, or any other medical care provided to alleviate a patient's | 
      
        |  | pain. | 
      
        |  | SECTION 7.  Section 25.0021(b), Government Code, is amended | 
      
        |  | to read as follows: | 
      
        |  | (b)  A statutory probate court as that term is defined in | 
      
        |  | Section 3(ii), Texas Probate Code, has: | 
      
        |  | (1)  the general jurisdiction of a probate court as | 
      
        |  | provided by the Texas Probate Code; and | 
      
        |  | (2)  the jurisdiction provided by law for a county | 
      
        |  | court to hear and determine actions, cases, matters, or proceedings | 
      
        |  | instituted under: | 
      
        |  | (A)  Section [ 166.046,] 192.027, 193.007, | 
      
        |  | 552.015, 552.019, 711.004, or 714.003, Health and Safety Code; | 
      
        |  | (B)  Chapter 462, Health and Safety Code; or | 
      
        |  | (C)  Subtitle C or D, Title 7, Health and Safety | 
      
        |  | Code. | 
      
        |  | SECTION 8.  Sections 166.046(f) and (g), Health and Safety | 
      
        |  | Code, are repealed. | 
      
        |  | SECTION 9.  This Act takes effect immediately if it receives | 
      
        |  | a vote of two-thirds of all the members elected to each house, as | 
      
        |  | provided by Section 39, Article III, Texas Constitution.  If this | 
      
        |  | Act does not receive the vote necessary for immediate effect, this | 
      
        |  | Act takes effect September 1, 2013. |