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AN ACT
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relating to the establishment of a sickle cell task force. |
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BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS: |
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SECTION 1. Subtitle B, Title 2, Health and Safety Code, is |
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amended by adding Chapter 50 to read as follows: |
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CHAPTER 50. SICKLE CELL TASK FORCE |
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Sec. 50.001. ESTABLISHMENT OF TASK FORCE. The executive |
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commissioner, in collaboration with the members appointed to the |
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Newborn Screening Advisory Committee to represent the sickle cell |
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community, shall establish and maintain a task force to raise |
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awareness of sickle cell disease and sickle cell trait. |
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Sec. 50.002. DUTIES. (a) The task force shall study and |
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advise the department on implementing the recommendations made in |
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the 2018 Sickle Cell Advisory Committee Report published by the |
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Sickle Cell Advisory Committee or any other report the executive |
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commissioner determines is appropriate. |
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(b) The executive commissioner may assign tasks to the task |
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force to accomplish the purposes of this chapter. |
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Sec. 50.003. COMPOSITION OF TASK FORCE. The task force is |
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composed of the following members appointed by the executive |
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commissioner: |
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(1) two members from community-based organizations |
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with experience addressing the needs of individuals with sickle |
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cell disease; |
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(2) two physicians specializing in hematology; |
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(3) two members of the public, each of whom either has |
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sickle cell disease or is a parent of a person with sickle cell |
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disease or trait; and |
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(4) one representative of a health-related |
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institution. |
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Sec. 50.004. ADMINISTRATIVE SUPPORT. The executive |
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commissioner shall provide administrative support services at the |
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request of the task force. |
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Sec. 50.005. PRESIDING OFFICER; MEETINGS. (a) The task |
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force shall elect a presiding officer from among its membership. |
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(b) The task force shall meet at the call of the presiding |
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officer. |
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(c) The task force shall hold its first meeting not later |
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than December 1, 2019. This subsection expires September 1, 2021. |
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Sec. 50.006. COMPENSATION; REIMBURSEMENT; GIFTS, GRANTS, |
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AND DONATIONS. A task force member is not entitled to compensation |
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for service on the task force but is entitled to reimbursement for |
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actual and necessary expenses incurred in performing task force |
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duties. The task force may accept gifts, grants, and donations to |
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pay for those expenses. |
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Sec. 50.007. ANNUAL REPORT. Not later than December 1 of |
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each year, the task force shall prepare and submit to the governor |
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and the legislature an annual written report that summarizes the |
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task force's work and includes any recommended actions or policy |
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changes endorsed by the task force. |
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SECTION 2. The sickle cell task force is not required to |
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comply with the reporting requirements under Section 50.007, Health |
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and Safety Code, as added by this Act, until December 1, 2020. |
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SECTION 3. This Act takes effect September 1, 2019. |
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______________________________ |
______________________________ |
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President of the Senate |
Speaker of the House |
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I certify that H.B. No. 3405 was passed by the House on April |
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17, 2019, by the following vote: Yeas 123, Nays 18, 2 present, not |
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voting. |
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______________________________ |
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Chief Clerk of the House |
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I certify that H.B. No. 3405 was passed by the Senate on May |
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21, 2019, by the following vote: Yeas 30, Nays 1. |
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______________________________ |
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Secretary of the Senate |
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APPROVED: _____________________ |
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Date |
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_____________________ |
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Governor |