88R7636 MPF-D
 
  By: Miles S.B. No. 1354
 
 
 
A BILL TO BE ENTITLED
 
AN ACT
  relating to the Rita Littlefield Chronic Kidney Disease Centralized
  Resource Center established within the Health and Human Services
  Commission.
         BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:
         SECTION 1.  Subtitle D, Title 2, Health and Safety Code, is
  amended by adding Chapter 83A to read as follows:
  CHAPTER 83A. RITA LITTLEFIELD CHRONIC KIDNEY DISEASE CENTRALIZED
  RESOURCE CENTER
         Sec. 83A.001.  DEFINITION. In this chapter, "resource
  center" means the Rita Littlefield Chronic Kidney Disease
  Centralized Resource Center established under this chapter.
         Sec. 83A.002.  ESTABLISHMENT OF RESOURCE CENTER. The Rita
  Littlefield Chronic Kidney Disease Centralized Resource Center is
  established within the commission to serve as a centralized system
  through which persons may:
               (1)  request and obtain information on chronic kidney
  disease and related illnesses, including each clinical stage of
  kidney disease and end stage renal disease; and
               (2)  register for inclusion in a kidney health clinical
  trials registry to receive information on clinical trials and
  clinical trial opportunities for chronic kidney disease and related
  illnesses.
         Sec. 83A.003.  ADMINISTRATION OF RESOURCE CENTER. (a) The
  commission shall administer the resource center in accordance with
  this chapter.
         (b)  The commission shall:
               (1)  structure and operate the resource center in a
  manner that provides a comprehensive approach for readily accessing
  information on and resources for chronic kidney disease and related
  illnesses, including for each clinical stage of kidney disease and
  end stage renal disease; and
               (2)  establish, and the resource center shall maintain,
  a kidney health clinical trials registry through which patients and
  family members of those patients may register to receive
  educational information on clinical trials and clinical trial
  opportunities based on the clinical stage of a patient's chronic
  kidney disease or end stage renal disease.
         (c)  The comprehensive approach described by Subsection
  (b)(1) must allow individuals to request and obtain or to directly
  access aggregated information on:
               (1)  chronic kidney disease awareness, prevention, and
  professional education opportunities, including:
                     (A)  awareness campaigns for chronic kidney
  disease and related illnesses;
                     (B)  information on accessing free screenings for
  chronic kidney disease and related illnesses;
                     (C)  professional resources and continuing
  education opportunities for health care providers who treat
  patients with chronic kidney disease or related illnesses;
                     (D)  for individuals who register for inclusion in
  the clinical trials registry established under Subsection (b)(2),
  information on clinical trials and clinical trial opportunities for
  chronic kidney disease and related illnesses; and
                     (E)  information on chronic kidney disease
  partners, including chronic kidney disease patient advocates,
  dialysis professionals, health care providers, researchers,
  manufacturers, and other appropriate persons;
               (2)  patient and family resources, including:
                     (A)  educational resources containing general and
  specific chronic kidney disease information;
                     (B)  resources containing information on chronic
  kidney disease prevention and early detection of chronic kidney
  disease and related illnesses;
                     (C)  nutritional and metabolism information for
  individuals with chronic kidney disease and related illnesses;
                     (D)  resources appropriately tailored to provide
  information on chronic kidney disease and related illnesses to
  individuals within groups that experience health disparities,
  including racial minorities;
                     (E)  directories for physicians who specialize in
  kidney health; and
                     (F)  programs through which an individual may
  obtain a kidney donation or be placed on a kidney donation list; and
               (3)  resources on chronic kidney disease treatment
  options and modalities, including:
                     (A)  kidney donations and kidney transplantation
  initiatives;
                     (B)  deceased and living organ donation programs
  and initiatives;
                     (C)  organ recipient registries;
                     (D)  treatment options for chronic kidney disease
  and end stage renal disease;
                     (E)  financial assistance for obtaining treatment
  for chronic kidney disease or related illnesses; and
                     (F)  options for receiving treatment for chronic
  kidney disease or related illnesses through the use of telehealth
  service or telemedicine medical service, as those terms are defined
  by Section 111.001, Occupations Code.
         (d)  The commission shall ensure information provided by the
  resource center is available in both English and Spanish.
         Sec. 83A.004.  INTERNET WEBSITE. In collaboration with the
  Chronic Kidney Disease Task Force established under Chapter 83, the
  commission shall establish and the resource center shall maintain
  an Internet website through which:
               (1)  resource center employees and members of the
  public may directly communicate and exchange information on chronic
  kidney disease and related illnesses; and
               (2)  individuals may register in the clinical trials
  registry established under Section 83A.003(b)(2).
         Sec. 83A.005.  GIFTS, GRANTS, AND DONATIONS. The commission
  may solicit and accept gifts, grants, and donations from any source
  to implement this chapter.
         SECTION 2.  The Health and Human Services Commission is
  required to implement a provision of this Act only if the
  legislature appropriates money specifically for that purpose. If
  the legislature does not appropriate money specifically for that
  purpose, the commission may, but is not required to, implement a
  provision of this Act using other appropriations available for that
  purpose.
         SECTION 3.  This Act takes effect September 1, 2025.