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R E S O L U T I O N
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WHEREAS, Rett Syndrome Awareness Month is being observed in |
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October 2025 to promote better understanding of this developmental |
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disorder; and |
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WHEREAS, Every two hours, a child is born with Rett syndrome, |
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a rare postnatal genetic neurological disorder that occurs almost |
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exclusively in females; symptoms first appear in infants and |
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toddlers between the ages of 6 to 18 months, followed by a period of |
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regression when motor skills are gradually lost over time; and |
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WHEREAS, Individuals with Rett syndrome require assistance |
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with daily tasks throughout their lives; more than half of those |
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diagnosed with the condition lose their ability to walk, and many |
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suffer from impairments such as loss of speech, seizures, |
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scoliosis, and irregular breathing patterns; one of the most |
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distinctive signs of Rett syndrome is near constant repetitive hand |
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movements while awake; and |
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WHEREAS, Biomedical research suggests that neurological |
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symptoms may be reversed even decades after diagnosis; scientists |
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discovered the gene that causes Rett syndrome in 1999, and there |
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have since been several breakthroughs in developing a cure; the |
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first FDA-approved treatment launched in 2023; and |
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WHEREAS, The International Rett Syndrome Foundation is one of |
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the world's largest private sources of funds for Rett syndrome |
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research; the organization works to address the full spectrum of |
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the disorder while advocating for policies that enhance the quality |
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of life for patients and their families; and |
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WHEREAS, Rett syndrome is a serious and life-changing |
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condition, and Rett Syndrome Awareness Month serves as a means of |
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rallying support for vital research and resources that can help |
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improve the outlook for those living with the disorder; now, |
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therefore, be it |
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RESOLVED, That the Senate of the 89th Texas Legislature |
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hereby recognize October 2025 as Rett Syndrome Awareness Month and |
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encourage all Texans to learn more about the condition. |